International Lichen Planus Self Help Web Site

NOTE: THE NEW ORAL LICHEN PLANUS WEBSITE CAN BE FOUND AT THE URL BELOW. PLEASE CHANGE YOUR BOOKMARKS NOW.

THIS OLD SITE WILL SOON GO DARK.

NEW LICHEN WEB:

http://bcd.tamhsc.edu/outreach/lichen/

NEW SESSION TRANSCRIPTS ARCHIVE:

http://bcd.tamhsc.edu/outreach/lichen/

Welcome to the Oral Lichen Planus Support Web site at Texas A&M Health Science Center Baylor College of Dentistry. This site, and its online group process, are intended to serve as a resource for those individuals who are seeking more information concerning lichen planus for themselves, family or friends.

Online Discussion August 27

About our recent discussion:

Dr Nancy Burkhart and Dr. Terry Rees of Texas A&M HSC Baylor College of Dentistry will host a live, online session for the International Oral Lichen Planus Support Group on Wednesday August 27th, 2008, 2:00 pm ET, USA (1:00 pm Central).

Our guest for the session will be Dr. Michaell A Huber, DDS, Associate Professor, Head, Division of Oral Medicine, Dental Diagnostic Science, The Dental School, University of Texas, Health Science Center, San Antonio.

Please join us with your questions and comments for future discussions of this nature. If you have a specific question that you would like to have answered, you can submit the question before the sessions to Dr. Burkhart –nburkhart@bcd.tamhsc.edu. We will answer questions online, but will also try to answer individual questions, or respond to comments as well.

If you are unsure of your time zone in relation to our designated time, the web site to check is Time Zone of the World at http://www.page-1.com/time/ Please join us for this event at http://www.bcd.tamhsc.edu/lichen and follow the prompts to join in the session or to just listen.

Previous session transcripts are posted.

Meet your host faculty
Dr. Nancy Burkhart, and Dr. Terry Rees.
Also, meet the site webmaster
Art Upton.
Goto: Your Hosts

Philosophy of The Support Group

The Oral Lichen Planus web site began in 1997 with the formation of the site and an email address for Dr. Burkhart to correspond with patients and practitioners. Since that time, we have added other features to enhance the site and we have increased our discussion sessions.

The philosophy of the site is to provide educational materials and individual support to patients with the disorder through a self-help concept. The individual patient is perceived as a member of the larger group that comprises the worldwide oral lichen planus patient population.

Purpose of the Web site:

The educational material provided on the site is intended to assist the patient, family members and the practitioner in obtaining currect information regarding oral lichen planus. The information provided on the IOLPSG is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her physician.

Confidentiality:

All material received on our web site is treated as confidential and is not shared with any third parties. Only those directly involved with the web site have access to the e-mails, addresses or any other personal information. Both Dr. Terry Rees and/or Dr. Nancy Burkhart review and answer e-mails directly.

In the event that an e-mail is shared with another party, such as a healthcare provider, permission is first obtained from the person who contacts us. Information in the form of e-mails and surveys are moved into separate files and treated confidentially.

Advertising Policy:

The IOLPSG is a non-profit organization and we do not operate through advertising or promotion of any specific products. Any products that are recommended are based solely on proven data of the success of the product and its use in the treatment of oral lichen planus. Our recommendations are subject to change based on new research and on new products that may become available or those that may assist more fully in treatment. We do not accept advertising or sponsorship of any dental products in exchange for advertising or promotion of a particular product.

GOALS FOR
THE INTERNATIONAL
ORAL LICHEN PLANUS
SUPPORT GROUP

To serve as a resource for patients, family members and practitioners

To address concerns and to offer emotional support individually as well as through a group effort

To serve as a central resource by providing accurate, current information

To promote significant research efforts

To serve as a referral system world-wide for other university based dental schools and facilities that are knowledgeable in the treatment of oral lichen planus

OLP Information & Live Discussions

We will be having periodic discussion room dates which will be listed on the page as they are scheduled. Additionally we will publish new information on oral lichen planus as well as other health-related materials. Please check this page periodically for new dates and new educational materials.

Your Input is Very Important

Above all, we would like to hear from you. Please let us know of any new procedures, medications or life-style changes which may have had a positive or negative effect regarding your condition. This site is dedicated to gathereing and sharing beneficial information with our visitors.

We hope that you find this resource beneficial. Please continue to make suggestions to us and let us know how we can meet your needs.

About Self-Help Research

Research on self-help groups has shown positive conclusions about patient recovery rates and has provided insight on the social and psychological benefits to the patient. Self-help programs provide several key functions:

Participants receive information about the disease through printed educational materials, research articles, referrals to facilities within their area and counseling.

Self-help groups provide a sense of community for the participants.

Self-help groups serve as a central resource for the patients and the practitioners. An established self-help group is concerned with the sharing of current information and the continuation of research efforts.

Patients establish a social support system with others who share similar characteristics and concerns.




	Please feel free to participate with us in this online process, as well as with others interested in this important topic, by emailing questions or comments to Dr. Nancy Burkhart. Dr Burkhart is an adjunct associiate professor and educational consultant in the Department of Periodontics Baylor College of Dentistry. BCD is a component of The Texas A&M University System Health Science Center.

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