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may2003 started at Thu May 15 10:58:00 PDT 2003 ........... |
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DrRees joined............. |
| aupton |
Dr. J, and Fred Dr Rees is here and Dr B will be on in a moment |
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MargitC1 joined............. |
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bonie joined............. |
| DrRees |
Peter, Welcome to
the session. We appreciate you joining us and sharing your
expertise |
| aupton |
Margit! You made it! The doctors will take your questions whenever you
are ready |
| drburkhart |
Hello
everyone. |
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Debs joined............. |
| drjacobsen |
Thank you for
letting me participate in todays discussions |
| drburkhart |
Welcome Dr.
Jacobsen-glad you could join us. |
| bonie |
Could you please tell me if you have any other medicine other then
Lidex for the mouth? |
| DrRees |
While we are waiting
to get the ball rolling is there anyone with us today who is new to the
self help group? |
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| bonie |
Yes, I am, Bonie |
| aupton |
Hi, debs, Olive-- enter a question and the docs will answer as soon as
they can. |
| drburkhart |
Hello, Olive,
welcome |
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| Debs |
Hello, are there any new drugs or herbal remedies being used to help
alievate symptoms that are "low risk"? |
| DrRees |
bonie, yes, there
are some other stronger topical steroids that can be useful and a couple
of new things as well that show some promise. |
| aupton |
Welcome, barry -- the docs will answer your questions as soon as they
can. |
| drburkhart |
Debs. what are you
currently using-any products. |
| Olive |
Please comment on aloe vera for maintenance of OLP.Type here |
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| DrRees |
Debs What do you
mean by low risk? |
| bonie |
Have you ever heard of Lp of the lips? |
| Debs |
none that have proven to do anything, protopic and oralbase |
| Debs |
I don't want to do a prednisone treatment if I can help it |
| drburkhart |
Olive, there is a
publication that was in General Dentistry not long ago on a case study
with aloe vera-just go to their site and you can read
it. |
| Ajit |
olp of lip is fairly common in occurence in India |
| DrRees |
bonie, yes it
happens sometimes on the vermillion border but it is not real
common. |
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| bonie |
I have it and had a biopsy done and it is LP, could you please help me
by giving me the names of the medicines. |
| drburkhart |
Ajit, do you have
OLP of the lip? Do you use any betel quid products? |
| DrRees |
Debs, I am
interested in your comments. Do you mean that you have used Protopic and
orabase or are you asking about its use? |
| aupton |
Welcome newcomers. The docs will answer questions as soon as they
can. |
| Debs |
I have used both drugs, but not seen any improvement. |
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| drburkhart |
Dr. Jacobsen, could
you tell us a little about any current research on
OLP? |
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| bonie |
I'm new at this, will my name appear if you are talking to me? |
| Deirdre |
Hello, I was diagnosed as having LP on my skin on April 1 (ha) of thsi
year. The following week my dentist identified OLP in my mouth -- just teh
white lacey stuff, on my inner cheeks. I have been using topical Liderm
cream on the skin lesions, and Reactine 1x daily, and Benadryl as needed
(all drug names are in Canadian versions), and this has been helping my
symptoms. I am seeing an oral pathologist tomorrow, and anOBGYN next week
(hopefully to rule out LP in the gen |
| drburkhart |
bonie, yes it
will |
| DrRees |
Debs, ok. There is
really no reason to think that orabase alone will do any good. Protopic
helps some people but not all. When you mention prednisone to me that
means taking prednisone tablets. That is considerably different from using
topical corticosteroids and the risk of side effects is
minimal. |
| aupton |
Good question, Bonie -- Doctors, please type the visitors name before
your response. |
| DrRees |
bonie,
yes. |
| Margit |
Prednisone is the only thing that helped me - for about 6 months --
any harm in taking it once a year? |
| Ajit |
Dr.Rees are you aware of any study using Metronidazole, Sulfasalazine,
anti-Helminthics & Lactisyn in the management of OLP as a non
steroidal alternative ? |
| drburkhart |
Deirdre, you may
need to check with your pathologist since it may be recommended that you
be off the meds before the biopsy for a period of
time |
| DrRees |
Bonie, I mean the
name you have given yourself for the session. |
| Debs |
My docs don't know what else we can try, and I don't want to try
prednisone unless it's the only option left. |
| Deirdre |
My question is, what can be done for PREVENTION? I sthere any known
protocol? I understand that learning new mechanisms to cope with stress
may be useful, however I am currently experiencing a new outbreak of skin
lesions (also responding well to the Liderm/Reactine.Benadryl treatment),
and I must say,, it is disheartening to be told by my dermatologist that I
am doing great, even as my skin is itching ferociously from head to
toe. |
| DrRees |
Ajit, yes
metronidazole and sulfasalazine have been used for severe cases and they
work sometimes. I don't know anything about using anti-helminthics or
lactisyn. |
| Olive |
Re:Prednisone. Is a Prednisone lavage (mouthtwash)daily appropriate
maintenance therapy? |
| drburkhart |
Deirdre, have you
been able to trace the out breaks to any specific
activities? |
| bonie |
I also have LP of the vagina and a biopsy was done in my throat and it
is there too, but it is my mouth and botom lip that drives me insane, it
is so painful, I need help. |
| DrRees |
Olive, Yes it has
been reported to be of benefit. The trouble with it is that it washes out
of your mouth pretty quickly. If it is controlling your olp then by all
means use it. It would probably be best to spit out rather than
swallow. |
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| barry |
Patient prticipants after the session please send me your email
address to barryj1@sbcglobal.net for ruther discussion off the
session |
| DrRees |
bonie, what kind of
treatment are you using now? |
| Olive |
Yes, I spit. Problem is I'm not getting the relief I did at first so
thought perhaps it's not even a good thing. |
| drburkhart |
Bonie, with regard
to your lip, do you drink hot tea or hot liquids. do you cause any trauma
to the area? |
| Debs |
I have found that taking a Zyrtec every night helps alot with itching,
nothing helps with burning or growth. |
| drj |
hi, sorry i got
disconnected and have now come back on as drj,. peter
jacobsen |
| DrRees |
Olive, there are
other alternatives so discuss it with your physician or dentist, whoever
prescribed the prednisone. |
| Olive |
OK & thanks. |
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| drburkhart |
Hello Peter, welcome
back. I had asked about any new research that you are
conducting? |
| Ajit |
Dr Burkhart & Dr. Rees may I send you a mail later detailing the
NON STEROIDAL INTEGRATED SEQUENTIAL THERAPY we in Goa have been using
& found it to be quite successful more so as it is a non
steroidal |
| bonie |
The only thing I'm using now is Lidex for my mouth and lip and Lidex E
for my vagina. Yes I drink coffee but the lesions are so bad that anything
that touches my lips make it crack and bleed. |
| Deirdre |
The diagnosis is so new (six weeks) that I haven't really ha a chance
to track patterns. It started in the fall, on my ankles then wristrs, and
I was told (by dermatologist ) in January tahtit was "dry skin." Th
elichenoid lesions erupted in March and looed odd enough that I went bcak
to the derm., who told me that until these characteristic bumps appeared,
a diagnosis f LP would have been almost impossible. I believe her. I
developed shingles just before Easter. I tho |
| DrRees |
bonie, has your olp
been confirmed by biopsy? Is it only on the outside of your
lips? |
| drburkhart |
Bonie, I have gotten
some emails from patients who have LP on the lip and they reported that a
cup that is hot would tend to make the area worse. |
| DrRees |
Ajit, sure but
please underestand that we may or may not agree with your suggestions. We
are after evidenced based information |
| Margit |
Has anyone tried biofeed back? |
| drj |
i don't do a lot of
research on lp here at the dental school, but i attended a recent oral
medincine meeting and there is a lot going on in autoimmune diseases,
which will be applicable to LP. most of the reseach is just that, research
and is not ready for general use. |
| drburkhart |
Margit, have you and
what results have you seen? |
| Ajit |
How much is Homoeopathy an accepted treatment choice in the USA
? |
| bonie |
Oh! yes, I had a biopsy to confirm it inside my mouth and my bottom
lip and yes it iis on the insie of my lip but not as bad as the
outside |
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| Margit |
No but I just thought if lp is stress related it might be worth
thinking about |
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| aupton |
drj, are you back with us now? |
| barry |
There seems to be a relationship between candida and OLP at least for
me. I use Diflucan and it helps |
| Margit |
I am ready to try anything - preferably non prescription |
| Debs |
Has there ever been an in-depth personal habits/lifestyle survey done
that may help us find more common links, golfers (chemicals), BC Pill use,
acrylic nails, etc? |
| DrRees |
Ajit, not as much as
it is in your part of the world but we do not close our minds to its
usefulness. The problem is that often the claimed results aren't the same
when the drug is studied under controlled
circumstances. |
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| drburkhart |
Ajit, interesting
question. General Dentisitry did publish the aloe vera article, but again
it was a small case presentation. Others may be doing more research on the
subject that has not been as of yet published. I do get emails from
patients who are trying different alternatives. |
| Ajit |
The Homoeopathic preparations : 1) Acid Nitricum 200 (potency) 2)
Lycopodium 200 (potency) & 3) Dulcamara 200 (potency ) are worth
considering under the guidance of a qualified Homoeopath |
| Margit |
My first question about prednisone has not been answered |
| DrRees |
Barry, you are right
in that there is a relationship. Many people with OLP use topical steroids
that tend to allow yeast to overgrow. Sometimes the lichen gets better but
the yeast gets worse and vice versa. Your care provider can help you
monitor this and I'm sure does. |
| DrRees |
Margit, ask again,
it got lost in the schuffle |
| aupton |
Dr. J, try now |
| bonie |
Could you please give me the name of the medicines I might try so my
Dr. can write the scripts? |
| drj |
people ask about
homoeopthy and natural products, but not a lot is know. if patients have
found some integrative approach that has worked for them, that is great,
but, usully there is little in the literature to support its use in LP. i
know of one study looking at curcurum, the active ingredient in
tumeric,(the yellow root used inn curries) using it for its
antiinflammatory effect, but the study is ongoing and in the first
stages. |
| DrRees |
bonie, we would
rather talk with your doctor because we can't really know for sure what
your condition is without seeing you. |
| Deirdre |
Can you pleasee if you know of any reseach into prevention? My OLP so
far is not causing me pain and I hope to keep it that way. Will the
Reactine (I use it in the morning, it's te same antihistamine as Zyrtec)
and Benadryl as needed (if the itching drives me to distraction,
esepcially at bedtime) perhaps going to help keep the OLP from worsening,
even as it helps me cop ewith my skin symptoms? Also teh LP feels VERY
ALLERGIC to me. I have allergies to pennacillin and |
| Margit |
Prednisone is the only help I have gotten(got it for something else)
OK to take it once a year? |
| drburkhart |
Debs, Dr. Rees and I
were just talking about getting some of our data together from our survey
and we could look for some patterns. There may even be some patterns with
the way that people deal with chronic type diseases. |
| drburkhart |
Peter, are you still
connected? |
| Ajit |
I agree with the need for controlled studies. Presently one of my post
graduate students is doing her M.D.S. Dissertation comparing steroidal,
non steroidal sequential integrated & placebo therapeutic programs in
the management of olp . The study should be completed by December
2003 |
| DrRees |
Margit. Prednisone
does work but as you know you shoouldn't take it unless you need it. We
have had good success using topical steroids in the mouth instead of
taking prednisone tablets. |
| bonie |
Well, he too is baffled by this LP, what do I have to give you so you
can talk with him, I'm sure he'll be happy for any suggstions |
| Margit |
The vaginal part is my problem tho it was diagnosed by dentist |
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| Debs |
Dr. Burkhart & Rees, I will be happy to assist in your survey
efforts, as I think this may shed more light on the causes. |
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| drj |
Dr jacobsen is
connected as Drj. since my other log on dropped me and i am reluctant to
try it again for fear of losing this one. peterj. |
| drburkhart |
Debs, just complete
the survey on the site, if you have not done so. |
| DrRees |
Bonie, you can get
our e-mail address form Dr. Burkart later but please discuss with him
first . We don't want to butt in on his treatment. |
| aupton |
Dr Jacobsen -- just stay on as drj |
| Renee21 |
Can the OLP penetrate on the uvula and in the neighbouring
regions? |
| aupton |
Folks, if anyone has a question for our special guest, Dr. Jacobsen,
address him as 'drj' |
| bunny |
Type hereI have stopped worrying about opl and use prn ..... the
Hydrocort and the orabase and Nyastatin |
| Ajit |
Personally I have seen Yoga help patients get over stress especially
avoid psyco-somatic conditions . But one needs to be regular |
| DrRees |
Renee, it happens
but that is pretty rare. Mostly it is on the skin, and in the mouth and
sometimes the genitalia. |
| Deirdre |
I am intrigued by someone's mention of candida. I had recurrent yeast
infections whiel breastefeeding my daughter, andhad to take diflucan to
get rid of the pain. Is there a known candida/LP link? Shoudl I discuss
this with my oral pathologist? Did I mention that I see her fo rthe first
time tomorrow, and I am hoping to have intelligent questions. I''m seeing
Dr. Linda Lee, at Princess Margaret Hospital in Toronto. |
| Margit |
I would really like to find someone who knows something about this - i
live in No Calif |
| drburkhart |
Renee, Dr. Eisen has
been a guest so be sure to read his transcripts on the subject. Yes, it
can occur and is often not considred unless the patient tells the OBGYN
that they have LP elsewhere. |
| bonie |
He uses prednisone, zithromax and diflucan, but the prednisone really
makes me nervous, so I don't use it very often |
| bunny |
My disregard for the opl seems to help that is not stressing
out. |
| drj |
LP can appear on any
skin surface and especially any specialized mucus membrane surface. that
includes the mouth the vigina and the urinary tract in
males. |
| DrRees |
Deirdre, Please
don't misunderstand. Candida doesn't cause lichen planus but sometimes the
treatment of lichen planus can cause candidiasis. So can a dry mouth which
seems to be a problem for some of our patients. |
| drburkhart |
Ajit, I have been
telling patients this for years. It is a good coping mechanism and stress
reducer. I find that most patients do not know how stressed they really
are until they reach a state of "no stress" in which to
compare. |
| Renee21 |
Yes Y have a dry mouth |
| Debs |
Has there been any connection to urinary tract infections or kidney
stones? |
| Deirdre |
DRJ, i had a problem wit hanal fissure about a year ago year ago, and
my asthsma specialist is treating me for GERD. Could this be related to
LP? |
| DrRees |
Debs, not that I am
aware of. |
| bunny |
Candida appears to be secondary to olp. when the candida clears
up..hello olp. |
| Deirdre |
Thank you, Dr. Rees. I didliked difulcan intensely. |
| Debs |
would LP in the eye look like cholesterol to an unknowing eye
doctor? |
| Deirdre |
That was "dislike" not "did-like" |
| Ajit |
As a lot of Urinary tract discussion is taking place , Sir would you
let me know whether it is also your observation that OLP patients often
demonstrate high Serum Uric Acid Levels ? |
| DrRees |
bunny, yes we know.
That happens to our patients too. What we usually do is stop the topical
steroid for 3 or 4 days and only use the yeast medication then start back
using both. That works most of the time but not
always. |
| Renee21 |
Can the OLP appear and desappear? |
| Deirdre |
Should I be worried if my mouth is feeling "tender"? Are here things I
can do to keep OLP from progressing? |
| bunny |
I find that not stressing out about olp is the best medicine. |
| drburkhart |
In general: If you
have OLP, and you go in for eyes, ears, vaginal, esophogeal problems , it
is wise to let your healthcare provider know in detail your
history. |
| DrRees |
Renee, yes that
happens maybe more often than we know. A mild case of olp is more likely
to come and go but we tell our patients that they should anticipate a
recurrence at some time in the future so they should be prepared to treat
it if necessary. |
| Renee21 |
Do you think the OLP appear just after the phisical effort? |
| Margit |
Biotene products toothpast mouthwash even gum best help for me |
| drj |
i know of no other
real direct medical connections between LP and other diseases, except
other autoimmune diseases. but certainly if one has LP it does not mean
that you are free from getting any other diseases. but it is often
frustrating and confusing to try to unify multiple medical problems into
one disease. |
| Ajit |
Do patients in the USA get suggestions to switch over to a Vegetarian
Diet -- particularly avoid eggs/ red meat ? |
| Deirdre |
Thanks, Dr. B. I find that some of my medical team are a bit skeptical
about LP as a potential factor. How can I make sure that the whole picture
does get investigated? Particularly since one's body is staked out in
pretty well-defined territories by medical specialty? |
| DrRees |
Margit, Biotene is
certainly a mild toothpaste and it doesn't have all the ingredients some
other toothpaste do. That suggests that you may need to be selective with
your choice of paste and there is nothing wrong with using Biotene
indefinitely |
| drburkhart |
Ajit, what do you
know about this? I don't usually get emails on this
topic. |
| Debs |
Dr J. what other autoimmune diseases may be connected with LP? |
| bunny |
Also some of the readings are frightening re olp leading to cancer. We
need some clarification and alleviation of fears. |
| drburkhart |
Deirdre, we would be
happy to send you some articles to share. If the patient does not mention
this, it is not something that is figured into the differntial diagnosis
usually. |
| Margit |
I an still thinking about prednisone - any comparable treatment not as
risky? |
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| Renee21 |
I have the cancer and I think, in my case, that's a link for me |
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| DrRees |
bunny, If there is
any increased risk it is slight but it means that you should continue to
be followed by your care provider so that any unusual changes can be
detected very early. Try not to worry about that but also do try to get
your olp under control. |
| Deirdre |
Thanks, Dr. B. I've been persisent in mentioning the LP. I'm hoping
the oral pathologist will help tie the pieces together. If not, I will
make an appointment to discuss the patchwork situation with my family
Dr. |
| Ajit |
I am a Professor at the Goa Dental College & Hospital teaching
Oral Medicine & Radiology. We do get a lot of OLP cases & have
found Serum Uric Acid Levels high in them. Switching to a Vegetarian Diet
has also helped-- particularly avoiding eggs & red meat. |
| drburkhart |
Bunny, any time you
have chronic irritation (raw, bleeding surfaces that do not heal), you
need to be checked on a regular basis. That way if there is a problem, it
can be discovered early. |
| Deirdre |
Ajit, isthis essentially a gout diet? |
| Renee21 |
Are there a person who understand the french for help me ? |
| drj |
theoretically, once
you demonstrate a tendency toward auto immune then the potential for
others exist, but a person is not destine to get
them |
| bunny |
I use biotine toothe pasteand a biotine mouthwash. every day an before
bedtime.Good results |
| Ajit |
Surely a vegetarian diet can also be a balanced diet |
| DrRees |
Margit, yes, topical
corticosteroids are safer and Protopic has received good reports but some
patients complain that it burns when you use it. There are one or two new
drugs that are not steroids that may help but so far they haven't been
studied for olp nor approved for that use. |
| bonie |
They now have a biotene gel for dry mouth use, I use it every night
along with the toothpaste and mouthwash |
| Debs |
Is there any evidence that with recurrent lp over time it will get
worse and worse? |
| drburkhart |
drj, are you seeing
a genetic factors? We know that OLP is not contagious, but I have been
receiving emails lately that a sister, mother may also be uder treatment.
Are we just reporting this better at this point? |
| Margit |
Yes - burning has been a problem but have not tried Protopic -
Thanks |
| DrRees |
Renee, I think you
are out of luck in finding someone who speaks French. We have a hard
enouth time speaking Texan! |
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| Deirdre |
Did someone mention LP/OLP outbreaks relating to heightened physical
activity? I have taken up playing hockey, which is exherting but also
excellent exercise. How would exercise worsen a phyical condition, or did
I misinterpret something (It's hard to scroll back as the text wants to
jump forward). |
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| Ajit |
Do your patients also report with ulcerative colitis /irritable bowel
syndrome ? If yes may be you cn consider treating that first & OLP
will surely reduce |
| drj |
another
topic/question i get from patients is what caused this to start and they
often have something that they associate the onset of their LP. there is
no know cause, you didn't get it from anybody and you can't give it to
anybody. but there is often some event that happened coincidental? to the
onset that an individual thinks may have started it. |
| Renee21 |
I want to know the same thing for the effort physical |
| drburkhart |
Deirdre, where did
you notice the LP-on the skin in areas that contact socks or garments that
you wear? |
| bonie |
Do I just send my Dr,'s name and address to Dr Burkhart |
| DrRees |
Deidre, I am not
aware of a connection with increased physical activity. Physical activity
is good and you should adhere to it so long as you don't have another
medical problem that restricts itl. |
| aupton |
Deirdre -- sorry for the fast scrolling. The transcripts will be
online later today if you miss something. |
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| drburkhart |
Everyone, we will
leave time at the end for the exchange of emails, if you wish to do
so. |
| bunny |
Have there been any local support groups,Dr. B,that you know of? I
would like to start one in Arizona. |
| DrRees |
bonie, we would
rather that you ask your doctor to contact us through Dr. Burkharts e-mail
address. |
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| Margit |
I was diagnosed not too long after radiation for breast cancer for
what that's worth - autoimmune damage? |
| Debs |
Have there been any allergy based studies other than dentistry
based? |
| Loraine1 |
Has anyone tried herbal treatments? I went to a Chinese herbalist for
a while. |
| Ajit |
My E-Mail is ajitdinkar@hotmail.com |
| DrRees |
Margit, did you take
chemotherapy as well? |
| aupton |
For newcomers, if you have a question, feel free to enter it. The
doctors will respond in order, and as soon as they can. |
| drburkhart |
Bunny, I am in
Dallas today, but I am trying to start a local group in Charlotte. If you
wish to contact me, I could give you some ideas on getting
started. |
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| Margit |
No chemo |
| Renee21 |
the LP can accomodation in the elbow? |
| drj |
as far as genetic,
some researchers feel that all human diseases have a genetic association,
except accidents. but what the connection is, is not known. and the
genetic part probably has to be triggered by some event, for example a
transient odd viral infection, before the disease starts. there is a lot
left to know. |
| Deirdre |
Dr Rees, I had assumed that the hockey was a good thing, and in fact
have signed up for summer league (am misisng the exercise dearly). Dr B,
the LP started on my ankles, moved to wrist, crept up my legs, and then
started on my back. It is now popping up on my abdomen. I did switch
detergents (had used Tide Free whiel my kids were infants/toddlers, but in
th epast year had been cheaping out). Have gone back to the detergents
included in my babying regime. THat may be h |
| DrRees |
Debs, there is some
information on food allergies but mostly it has to do with flavoring
agents in foods. |
| bonie |
I will do that asap and I hope and pray he contacts you, Dr.'s are
very busy these days, but he is very concerned ab ot LP |
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| aupton |
POINT OF ORDER for everyone: Please let's try to keep our comments and
questions as short as possible. This will help with the fast scrolling
problem. Thanks. |
| Deirdre |
ok. |
| Margit |
What is in biotene? |
| Debs |
If a cause was something like chemicals used on grass, would there be
a way to test and determine this? |
| drburkhart |
Deirdre, Just a note
to answer you and for everyone else also. I think that with chronic
lichen, it is a good idea to keep a journal and read over the material
from time to time. Sometimes you may see patterns that you would not
otherwise notice. I do believe that there may be trigger mechanisms just
as Drj has mentioned. |
| Ajit |
Deirdre may be asked to consult a Homoeopath with the Homoeopathic
medicines suggested earlier in this chat . His signs are typical & the
lesions would start healing in the reverse order of their occurance |
| DrRees |
Margit, usually you
can't find out everything that is in a toothpaste but we know that biotene
does not have something called sodium lauryl sulfate that can be an
irritant and we don't think it has cinnamon in it. |
| Deirdre |
Drs, I've seen references to Biotene but haven't seen it on Canadian
drugstore shelves. Is it an Rx product, a health food product, or
something I might find at the Giant eagle in Buffalo? |
| bonie |
You find biotene products in a good drugstore |
| Margit |
Thats interesting because I cant use any product with sodium laurl
sulfate in it |
| drburkhart |
Deirdre, if you go
to our site on the "Links" section, you can click and go directly to
Laclede-the makers of biotene |
| DrRees |
Deidre, Giant eagle
probably has it but I'll bet it available in Canada. It is over the
counter and if you ask your pharmacist he/she can order it for you if they
don't stock it. |
| Ajit |
Is Cinnamon really a culprit in OLP causation / aggravation / |
| drj |
biotene is made by
the laclede inc. in the los angles area. you should be able to find them
on www.google and get locations where you can find the produce and all the
ingredients. |
| Loraine1 |
Cinnamon? Is it an irritant? I've been drinking chai tea for
years. |
| Deirdre |
thansk . Btw, I may play hockey, but I am a mom. |
| DrRees |
Ajit, We have some
data that indicates that. |
| Deirdre |
Would it be cinnamon, or any strongly-flavoured spice? |
| barry |
I have used the children tooth pastes with success. Not minty. |
| Debs |
Is your data that cinnamon is an irritant or causation? |
| DrRees |
Loraine, the problem
is really something called cinnamic aldehyde that is in cinnamon. You can
find out if it is a factor with you by avoiding it for a couple of
weeks. |
| Loraine1 |
Thanks, I'll do that. |
| drburkhart |
Deirdre, the OLP
patients here at the stomotolgy center as asked to also discontinue
spearmint, peppermint and other flavoring agents |
| Deirdre |
Dr Rees, is there a list of known causal factors avialble? |
| drburkhart |
Also,
wintergreen |
| drj |
cinnamon is the most
common oral allergen. if you are using a cinnomon containing product you
should stop for 2-3 weeks to see how your mouth responds. depending you
can restart to see if problems arise |
| DrRees |
Deidre, we are
evaluating that right now. The problem is that other flavoring agents such
as peppermint, seems to be cross reactive in someone who is allergic to
cinnamon products. |
| Fred |
I've been watching the discussions and think I might try Biotene for a
mild OLP that may be triggered by HOT drinks and spicy snacks... I didn't
like the Lyderm treatment. |
| Ajit |
Is Denta-Care / Meswak / Vicco Vajradanti tooth paste available in the
USA . These are all Ayurvedic preparations. Also is Chandrika / Medimix/
Calendula Toilet Soap used to reduce skin itching in OLP cases in the USA
? |
| Deirdre |
I had to kick mint toothpaste whiel pregnant but used cinnamon
CloseUp. I'm not sure what oter flabours there are, aside from bubblegum
and flouride-free grape. |
| bunny |
I have read that olp usuallu clear in about 18 months. Any truth to
that? |
| DrRees |
Deidre, there are
some review articles that outline most of those. Contact Dr. Burkhart
later and I am sure she will be willing to send you some
material. |
| Renee21 |
Do you think that the OLP can appear after the physical effort? |
| pro.parachatgroup.com |
[2009] touser We have
ABOUT 10 MINUTES TO GO. Everyone please beging winding your discussions
down. We will leave the room open for about 5 minutes or so after the
session for the exchange of emails if you choose. |
| drburkhart |
Ajit, do you see any
OLP and betel quid connection(sorry if you already responded to
this) |
| bonie |
what is the lyderm treatment? |
| DrRees |
Renee,
no. |
| Renee21 |
no? |
| Ajit |
BETEL qUID CHEWING HAS NO REPORTED RELATION WITH olp. bUT IS CERTAINLY
ASSOCIATED WITH lEUKOPLAKIA |
| Deirdre |
DRS, are yu aware of anything on preventing OLP from escallating? I
understyand that it can become quite nasty. |
| Ajit |
Sorry about the caps |
| DrRees |
Renee, no physical
effort won't make your lichen planus worse unless you scratch a lot after
you sweat. You should try to avoid scratching a lichen lesion because that
can spread it. |
| Debs |
Is there anything we as patients can do, to assist in research for
prevention? |
| DrRees |
Debs, If someone is
conducting a study in your area, participate in it. |
| Loraine1 |
What about brushing teeth? My oral hygenist insists I brush my gums
and rince with Lysterine as well as floss. Sometimes that hurts. |
| Ajit |
Drs. do recommend Ayurvedic Soaps to reduce itching. Asking the foam
to be left on for 10 minutes |
| Deirdre |
DR REES: I didn't realize that one could actively help LP to spread. I
have been avoiding scratching to avoid scarring. I thought it just popped
up. Can I be making it spread? How? |
| drj |
the denta-care
product contains tea tree oil or melaluca oil as the active ingredient
(and cinnomon as a flavor) the tea tree oil commonly causes an allergic
reaction. the oil is used as a disinfectant. but since LP is not an
infection, i would not expect it to be of any value and has the potential
to be a problem. |
| drburkhart |
Deirdre, I think
that lifestyle changes are a big factors. Look at it this way, it won't
make things worse and you could live longer as a side
. |
| DrRees |
Deidre, you are
right it can become quite severe. Try to control it while it is mild and
usually that won't become a problem. Discuss this with your care
provider. |
| Deirdre |
Re; Control. I hope the oral pathologist will have concrete info on
that. I won't see her until tomorrow. If I have questions I will send them
to Dr. B. |
| Deirdre |
DR REESE and PJB, are you aware of OLP/LP specialists in the Toronto
area? |
| DrRees |
Deidre, scratching
is well know to cause spreading along the scratch line. That's why you
often have it on the inside of your cheeks along the chewing
line. |
| Debs |
Thanks the doctors for putting this on for us. |
| pro.parachatgroup.com |
[2009] touser Many
thanks to the Doctors from Baylor, Dr. Rees and Dr. Burkhart. And special
thanks to our guest from San Francisco, Dr. Jacobsen. Please begin signing
off now. The room will be shut down shortly after the hour. The
transcripts should be on the web site by in the morning. See you all next
time. |
| Ajit |
thanks Drs. |
| bunny |
Stop stressing out about olp...........best medicine. |
| DrRees |
Deirdre, contact Dr.
Burkhart and we will try our best to find one. |
| Renee21 |
Thanks |
| Deirdre |
Can we exchange email addresses? |
| drburkhart |
bunny and everyone:
stop stressing out about anything! |
| barry |
Thank you Ajit |
| Margit |
drj - where are you located in SF? |
| drburkhart |
Thanks
everyone. |
| Deirdre |
I am in TOronto. Do any of you live nearby? |
| Ajit |
Shall be in touch with you May I request E-Mail address of Dr.
Rees? |
| drj |
thank you for
allowing me to participate. all the input for LP suffers has been valuable
for me, to better understand the stress of haveing the
disease |
| DrRees |
So long folks, I hoe
this has been of some benefit to you. Thank you Dr. Jacobson for joinging
us. |
| Debs |
can be reached at peakmontana@yahoo.com |
| Loraine1 |
Thanks and bye. |
|
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Loraine1 left............. |
| Deirdre |
I'm at deirdrechic@yahoo.com |
| drburkhart |
Thanks so much Dr.
Jacobson for joining in today and we hope that you will join us
again. |
|
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|
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| drj |
I am at the
university of the pacific dental school.
|
| Deirdre |
Thank you, doctors, for your time. |
|
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at Thu May 15 12:08:46 PDT 2003 ........... |