Log file lp052798 for
Chat room Dental_Study_Club
-- Log on lp052798 started at Wed May 27 15:15:37 PDT 1998
aupton Hi, jacky. The docs won't be here for another half hour or so. I'm just testing the system.
jacky hi " I' writing from holland and I don" know how this conversation is working.and I don" tknow iff you can read my questions becourse my englisch is not very good
aupton jacky, I can see your question fine. And do the best you can with English. The way it works is that the doctors will be here in about 40 minutes, and you will see their names on screen. Just type in a question, and hit your enter key. The doctors will respond.
jacky thank you for helping me out see you in 40 minutes
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-- Log on lp052798 started at Wed May 27 15:39:03 PDT 1998
aupton jacky, we are in the united states in the state of texas.
jacky are you someone of the paralogic corporation
aupton no, I am with the college of dentistry. I run the college's web and internet services
jacky can anyone tell me when the discusion start it is here in holland already 45 minutes past midnight,and i dont know howlong the discusion take time
jacky i am afraid i cannot stay awake
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aupton jacky, the discussion will begin on the hour. Should start in about 10 minutes, and will last one hour.
aupton Welcome, everyone. The doctors will be logging on shortly. Have your questions ready!
jacky oke thank you
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burkhart Hi Jacky! How are things in Holland?
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burkhart Welcome Boots! Good to hear from you again.
boots Dr. Burkhart thanks
boots could you tell me what lp looks like on the skin?
jacky its very rainy here
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jacky can you tell me what to do of oral lp
burkhart Boots, Usually the lesions are purple-brown, flat and may be single or multiple.
burkhart Jacky, How do you know that you have oral lichen planus?
boots I have not yet had an oral biopsy to determine if I do suffer from lp but I have not had an oral breakout since I began using biotene toothpaste and other gentle oral cleansing products. However, right now I have a breakout on my hands that is red and presents on the joints and is round and flat.
burkhart Jacky, Do you only have the lesions on your skin?
jacky i have not but my mother she has it for two years now and the docters donot know what to do she has tryed so many medicines,the last one wasneotygason
jacky so i try it on your webside maybe you can help her
burkhart Jacky, Sometimes patients have allergic responses to dental products and additionally, the patient may have more ulcer-like areas when the oral lichen planus flares.
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burkhart Hello, 2sweet. How are you?
2sweet Doing well~thank you
burkhart Good, How can we help you?
rees Type HEREJackie, this is Rees. I work with Dr. Burkhart. It sounds as though you may have had an irritant or allergic reaction to a toothpaste or other oral hygiene product instead of LP. What kind of toothpaste were you using before? Also, we are not familiar with neotygason in this country.
2sweet just sitting in to see if there is anything new
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boots can skin lesions be biopsied?
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jacky she is tested of lp she have a new mouthprothese without anything that can possebly give a allergic reaction
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burkhart 2sweet, Is your lichen planus bothering you right now?
burkhart Hello Tess, How can we help you? How are you?
rees Boots, it is fairly easy to biopsy a skin lesion and the likelihood of a good diagnostic report is better than on the oral mucous membranes.
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2sweet yes...my dentist perscribed Triamcinolone Acetonide paste...been on it for about 4 days
boots where would I go for a skin biopsy, that is, what type of doctor should I see?
jacky neotygason is a medisin whit vitamine a
rees Boots, a dermatologist is the person to see.
plemons 2sweet, How is the triamcinolone working? Is it applied easily?
2sweet its ok to use ...doesn't stay on for long....it seems to take a little of the pain away
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burkhart Jacky, Do you have any other family members with oral problems? What other medications are you using?
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rees Jackie, first there are some studies that suggest that synthetic vitamin A (retinoids) will help some forms of LP but occasionally make other forms worse. The only thing to do is try the neotygason and see how it works. Second, what type of prosthesis does you Mother have? Is it made of metal or plastic?
jacky it is made of porselein (i donot know the englisch word of it
plemons 2sweet, it often takes a couple of weeks for topical steroids to begin to work well. How does it taste? Many of the medications we use taste a little bitter.
jacky by the way neotygason doesnot work at all
rees Jacky- good, that is not very likely to cause an allergic reaction but sometimes other parts of the prosthesis besides the teeth have other materials in them.
jacky she has try it for over a year now
2sweet there is really no taste and that is very nice. I wanted to try Lidex, but my dentist said he could not find it for oral use.
boots does lp affect the joints internally? As in arthritis.
jacky no not by my mother she has let it made by a special dantist specialised in these sort of things
burkhart Boots, We have found that patients with lichen planus fall in a certain age group-usually 50's and this age group also tends to have more arthritis.
jacky what is the medicine you give your patients whit oral lp maybe we can say it to our specialist
2sweet I wish my Lichen Planus had waited until I was in my 50's(I'm 31)...but I also have the startings of arthritis
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rees Jacky. I may be repeating a bit but the first step is to have your Mother receive a biopsy to confirm LP. If that is what she has we would treat her with a topical antiinflammatory agent (corticosteroid) That usually will give some relief but there are a variety of them and some are more effective than others. If the topical steroid doesn't work then there is a possibility that other medications she is taking should be changed. The type of steroid we usually sta
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burkhart 2sweet, Do you have any other medical conditions? This is a young age, but we have seen patients in this age group. Do you have any family member with lichen planus?
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jacky she already has a skin biopsy and a biopsy of the mouth
burkhart Hello LRB, How are you?
2sweet no. Nobody has ever heard of it. I am also a type 1 diabetic
LRB I'm fine, thanks.
burkhart What can we help you with tonight?
LRB Are there any new studies being done about LP
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jacky an other question can i save these answers in my computer so i can let it read to my mother
plemons 2sweet, some medications used to treat both arthritis and diabetes can occasionally cause lichenoid reactions. Can you correlate the beginning of your lesions with any medications?
jacky and if so do you know how
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aupton jacky, email me at: art@tambcd.edu and I will tell you how to get a transcript
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aupton Also, for everyone else as well, A transcript of the session will be available on our web site in a couple of days. The URL is http://www.tambcd.edu/lichen
boots what does licenoid mean?
2sweet No ...pretty positive on that. It seems very unrelated to anything.
LRB My LP is in its early stages, so no biopsy. Sometimes my gums are sore. Can that be LP or something else, possibly? How can you tell?
burkhart LRB, There are studies being conducted that evaluate the trigger mechanisms of lichen planus. We are currently evaluating lichen in a retrospective study, but are not far along in these efforts at the present. I am especially interested in lifestyle and stress factors.
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LRB Our support group is wondering if you are putting together a questionnaire/survey to help identify that in all of us?
jacky is it so hard to tread this
rees LRB- there are a number of so-called mucocutaneous (skin and mucous membrane) diseases that can look like LP in the mouth. That is one of the reasons that a biopsy is so important. We often see patients who have been under treatment for years for the wrong disease.
burkhart LRB Yes, you really need a biopsy in order to know what type of treatment is beneficial. Many mucosal disorders appear similar clinically.
LRB Thanks.
LRB I have the white lines inside my cheeks, so that is why I think my periodontist said I was in the early stages--he said too soon to take a biopsy, and said nothing on my recent visit.
burkhart LRB-We have talked about this idea and would like to conduct this research, establishing a data base; as is the usual case, the element of funding and resources is a problem, but we are working on that aspect.
rees Jackie- I agree, it is hard to read this since we are talking with a number of people at the same time. If you would prefer to contact us at the web-site soon we will be happy to try to answer your questions more clearly.
2sweet Does anyone have recurrent blisters as part of their OLP?
boots I didn't know there were stages to lp. Is that right?
LRB I've had "flare-ups" but none worth mentioning since giving up Listerine and being careful of mint and spicy foods.
burkhart LRB, This is good. At least you are not having any discomfort. We strongly advise that lichen planus is monitored several times a year and more frequently if you are having problems.
LRB Ok
boots What do you mean by recurrent. Blisters that heal and that re-occur in the same place?
2sweet Yes- exactly
plemons Boots, there are multiple forms or clinical presentations of lichen planus in the mouth. It ranges from white, lacy lines to white patches to red areas to ulcerations or blisters like 2sweet just mentioned. They are not really stages because one doesn't necessarily lead to another. In fact, most people have more than one kind of lesions at a time.
burkhart LRB-Yes, we hear these comments from others. Usually a log of trigger mechanisms is beneficial.
rees Boots- there is a blistering form of LP but it is very uncommon. Some of the other mucocutaneous diseases are more likely to be associated with blisters.
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jacky how can i contact you for more information i realy want to know more of this the doctors in holland wouldnot sayvery much to us the want us to look stuppid
aupton jacky, email me at this address: art@tambcd.edu and I will get you all the information you need
2sweet Well I definately have blisters and I have been biopsied for LP- I sure hope I don't have something else in addition.
jacky thank you very much it go to fast for me i cannot hold you by
boots 2sweet, sorry I'm not certain how to answer you. I have had ulcers in my mouth but only this past February did I ever hear of LP. I have not had a flare up since and did not get a biopsy since the episode ended in 5 days.
rees 2sweet- sounds like it is LP so hang in there and try various treatments until the one that works best for you can be determined.
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burkhart Tess, Do you have any questions for us?
boots I currently have a small flare up on a couple of knuckles of my hands. These bumps only last about a day. I notice them because they hurt when I move my hands.
burkhart To all: Do any of you have photographs taken on these lesions by your dentist?
LRB No.
2sweet After going through 5 docs and various dental people - I think I finally found a dentist that wants to help me. It's amazing how little anyone knows!
2sweet No
boots No, but I'll remember to get one.
jacky by the way in holland the give for skin lp often msm fort capsules maybe you can try this medicin
burkhart Oral photographs allow the patient and practitioner an exellent opportunity to compare the lesions and status of the oral condition on subsequent visits.
jacky it is avaleble in america because i had order them in your country the skin lp of my mother isnot so bad anymore
2sweet Do you (burkhart or rees) ever talk to other practitioners to help them understand this disease?
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rees 2sweet. In almost every area of the country there are some health care providers who know a lot about LP. The ones we know are mostly dentists but if you'll contact us later we will be happy to try to match you up with someone within a couple of hundred miles of where you live. We also would be more than happy to talk with any of your health care providers about the contidion.
boots Yes, 2sweet, my dentist's entire office attended on of the seminars held by Dr. Burkhart.
2sweet oh terrific!!!!
jacky do you know any doctor in holland who know about you
burkhart 2sweet, yes, here in The U.S. there is a strong continuing education emphasis in dentistry and dental hygiene. There is a special need for more siminars and education in oral conditions.
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rees Jacky- no but I know about some of them and I can give you a name or two when you contact us later.
burkhart Herb, how can we help you?
jacky wunderfull
Herb I had lichen planus once and someone told me it was related to planters warts. Is that true?
Herb I had the red lesions in both me cheeks.
rees Herb-nope!
Herb Why is rees giving me the nope-a-dope?
rees Herb- Sorry about that I was trying to be cute. That always gets me in trouble
jacky do you get many calls from oversee
Herb My lesions only hurt sometimes, usually when I eat things like onions, garlic, or sometimes just the flowery looking weeds that grow in my yard
LRB If lesions are between your teeth and the perio decides a biopsy should be done, is tooth removal necessary to get the biopsy they need?
burkhart Jacky, we really do! In the last week we have had inquiries from several countries .
burkhart Herb, what kind of flowery weeds are you growing these days?
plemons LRB, tooth removal is certainly not necessary. Only a small bit of tissue is needed during the biopsy.
Herb My doctor got me gel to put in my mouth when they hurt - is that what I need? Sometimes it helps, but usually it doesn't.
LRB Thank you.
jacky herb you better can not eat spicy food or drink coffee and eat chips,i read that in our medical paper
rees Herb- There are several types of gels. We use a steroid get quite often to treat LP. Do you know which one you have been prescribed?
LRB I've notice a white line, similar to the inside of my cheeks, at the floor of my mouth. Is that common? Bumps, but no sores.
Herb Lidix
Herb I'm supposted to use it only when it hurts
2sweet Has any one ever heard of, or tried Triamcinolone Acetonide Dental Paste USP,0.1%?
LRB No
plemons LRB, white lesions of lichen planus can occur anywhere in the mouth including under the tongue. However, it is possible to have other things as well. That's why it is important to be followed by a dentist who is used to seeing patients with lichen planus.
Herb It also hurts when I watch Burt reynolds movies
Herb I think Burt reynolds could use that Lidix
rees Herb- That is often very effective and in fact that is what we use the most. If it is effective in controlling your pain you might talk with your doctor about using it a bit more often for several weeks. Sometimes that makes the lesions go away. We however, have no cure for Burt Reynolds movies
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Herb I wonder, actually, what Burt would do with it
2sweet is it the same thing that is used for the skin? The Lidex?
jacky can lp also being on the tongue my mothers tongue is also
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plemons Jacky, my name is Jackie also. Tongue lesions of lichen planus often appear white in color although red lesions and ulcerations are possible.
rees 2sweet- Yes its the same lidex. It comes in several forms and the form might be different from what is prescribed for the skin.
Herb Seriously, are the ocassional lesions on my tongue related?
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aupton Time flys when you're having fun! About 5 minutes to go, folks. Please begin winding down. Check the web site in the next day or two for a transcript. Contact us at this email address: art@tambcd.edu and thanks for dropping by. Info about the next session will be posted on the web soon.
Herb I have them on my tongue less frequently and they don't hurt like the cheek ones.
burkhart Tess, Do you have lichen planus
Herb I saw a dentist once, who didn't have lichen planus, but he did have an obvious finger infection.
rees Herb- I think only your dentist or physician can answer that for sure but LP can occur anywhere in the mouth and on the skin. It can even occur on the genitalia. If you are asking about the relationship with planters warts there is no known relationship that we are aware of.
burkhart Herb, As we mentioned earlier, you really need to be monitored with any oral lesions at least twice a year and more often if you are having prolems.
jacky thank you all for listening,i have enjoing it many greetings from holland.see you soon
boots Thank you all. Good luck, Jacky, looks like you are taking good care of your mom.
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Herb I'll write some genitalia questions if 2sweet promises not to look.
LRB Thank you from me, too.
jacky yes ilove her very much i only have one
burkhart Please contact us if you have any additional questions.
Herb Bye - thanks
2sweet When I've tried to get a Lidex prescription - the doctor and the pharmacists only found it for skin use. It is not shown for oral indications.
jacky if i know more about our medicine of lp in holland i send it to you
jacky maybe you can use them
burkhart We will add more information on the page so please keep in touch. Also if you have any information that you believe will be beneficial to the study of lichen planus and that will promote research, please let us hear from you. Thanks.
rees 2sweet. That is a common comment but there is a huge body of literature describing its safe use in the oral cavity and on other mucous membranes. If you have a particular pharmacist of physician who would like information about that literature let us know and we'll try to help.
aupton Thanks, folks. The doctors and Elvis have left the building. We can't seem to get rid of Burt, though!
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jacky thank you aupton i write you as soon as possible
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-- Log stopped at Wed May 27 17:03:33 PDT 1998
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