|
|
.............. Log
on 050915 started at Thu Sep 15 09:49:30 PDT 2005 ........... |
|
|
............................ art joined............. |
|
|
............................ art2 joined............. |
|
|
............................ DrsBrennanandFox joined............. |
|
|
............................ DrsBrennanandFox left............. |
|
|
............................ art2 left............. |
|
|
............................ art left............. |
|
|
............................ aupton left............. |
|
|
.............. Log
stopped at Thu Sep 15 10:08:02 PDT 2005 ........... |
|
|
.............. Log
on 050915 started at Thu Sep 15 10:09:08 PDT 2005 ........... |
|
|
............................ aupton left............. |
|
|
.............. Log
stopped at Thu Sep 15 10:19:47 PDT 2005 ........... |
|
|
.............. Log
on 050915 started at Thu Sep 15 10:22:30 PDT 2005 ........... |
|
|
............................ JC11 joined............. |
|
|
............................ MM joined............. |
|
aupton |
Hello, jc11 and mm the docs will be here shortly. |
|
JC11 |
thanks |
|
MM |
thx |
|
|
............................ flower joined............. |
|
|
............................ Tessa8898 joined............. |
|
|
............................ drrees joined............. |
|
aupton |
hi, everyone. dr burkhart will start the session in just a moment |
|
|
............................ Pattyf joined............. |
|
|
............................ DiZel joined............. |
|
aupton |
hi patty, the session will begin in a moment |
|
|
............................ JW joined............. |
|
Pattyf |
Thanks |
|
|
............................ DrsBrennanandFox joined............. |
|
|
............................ Terri joined............. |
|
|
............................ KAS joined............. |
|
aupton |
hi, doctors. We're waiting or dr
burkhart to begin |
|
|
............................ drburkhart joined............. |
|
|
............................ Claude joined............. |
|
|
............................ j joined............. |
|
drburkhart |
Hello everyone. Sorry I had trouble getting on myself! |
|
aupton |
ok let's begin |
|
DiZel |
Type hereI have just recovered
from spinal osteomyelistiswhich stemmed form open
lesions in my mouth from OLP. |
|
JC11 |
What are the effects of sun on OLP? |
|
JC11 |
lips mainly |
|
JW |
I use lidex gel in my mouth
every night. Can this cause me to gain weight? |
|
drburkhart |
JC11-Do you have external lesions as well? |
|
|
............................ Wilma joined............. |
|
Pattyf |
What are some of the treatments that cause relief. I have
unbearable pain off and on for 20 yers. |
|
JC11 |
not really lesions, mainly redness |
|
DrsBrennanandFox |
JC11 We are unaware of any effects of sun on OLP. The sun
can reactivate Herpetic lesions |
|
|
............................ Judah joined............. |
|
aupton |
new visitors. The doctors will take your questions as they
can -- please be patient |
|
JC11 |
what about protopic in the sun? |
|
drrees |
Hi, eveyone. Patty we have
mostly used topical steroids that seem to be very effective for most
patients. What have you used over the 20 years? |
|
drburkhart |
JC11, I get emails from patients who have some problems
with the sun and skin lesons, but it seems to
depend upon whether the lesions are extensive and erosive in nature. |
|
flower |
Type here flower Hello Dr. B I have been ok for 2 yrs now
my OLP is back,I,ve taken Nizoral |
|
DiZel |
Protopic doesn't help at all. Aything else? Something for the pain? |
|
|
............................ Mimi joined............. |
|
|
............................ Bud joined............. |
|
|
............................ Marta joined............. |
|
drburkhart |
Hi Flower! I do remember you. Do you know what may have
been a trigger for your current out breaks? |
|
|
............................ Coro joined............. |
|
drrees |
JC11- Protopic can probably
cause some tendency to develop sunburn in the areas wwhere
it is applied. |
|
aupton |
new visitors. The doctors will take your questions and
answer as they can. Please be patient and no crosstalking,
please. |
|
flower |
flower but I'm not getting results, any other options? |
|
|
............................ Kay joined............. |
|
DrsBrennanandFox |
PattyF-Have other causes of your
pain been ruled out? For example, fungal infections or vitamin deficiencies |
|
drburkhart |
Flower, is the LP on your scalp? |
|
drrees |
Our visiting doctors have a great deal of expertise
regarding the possible relationship between dry mouth and OLP. I wonder how
many of you who have olp also find your mouth to be
dry? |
|
|
............................ art2 joined............. |
|
|
............................ Tina joined............. |
|
flower |
Flower stress and too many antbiotics |
|
JC11 |
If LP has surfaced but subsided in other place does that
make OLP more likely to subside on the lips, or does it operate completely
independent of other areas? |
|
JW |
I have used lidex gel in my
mouth for two years and have gained 15 pounds. Never had a weight problem
before. Can the lidex be causing it? |
|
|
............................ marjree joined............. |
|
Pattyf |
Dr. Rees, I have mainly used Triamcinolone
Acetonide recently with minimal relief. |
|
drburkhart |
Flower, why were taking the antibiotics and what type of
stress-chronic related to everyday type things? |
|
|
............................ rae1 joined............. |
|
aupton |
Hi, new visitors. The doctors will take your questions as
they can. |
|
Mimi |
Have OLP and VERY dry mouth. Do you consider chewing gum
helpful (it does moisten the mouth) or not? |
|
Judah |
I would like to share an experience with BIOTENE, uh, fake
saliva, I think it's called when there is time |
|
Claude |
I experience dry mouth, but particularly dry lips. What
treatment can you recommend? |
|
Judah |
lol |
|
drrees |
Patty, you should talk to your doctor and make sure that
it is olp that you have. If so, the triamcinolone may not be strong enough for you. |
|
DrsBrennanandFox |
We haven't heard of a connection between using Lidex gell and weight gain. Maybe
you are more comfortable and can eat more! |
|
aupton |
Judah, please stay with the question/answer format. Thanks |
|
drburkhart |
Mimi what type of gum-one that is sugarless? |
|
Coro |
My OLP was diagnosed a year ago, but dry mouth is a recent
thing and seems to get progressively worse. Is that usual? |
|
JC11 |
biotene has worked very well for
me, dry mouth has improved alot |
|
Mimi |
yes, sugarless. Not only my mouth is dry, but oftimes my throat too. |
|
|
............................ ken joined............. |
|
drrees |
Mimi, sugarless is probably of some benefit in stimulating
your own natural saliva. |
|
Pattyf |
I have had my diagnosis confirmed, can you recommend
stronger medication to discuss with my physician. |
|
Mimi |
thank you. it does help. :) |
|
Tina |
What test or biopsy should be taken in order to know
exactly if you have lichen planus? I have had
biopsy and they say it's like lickus planus. |
|
JW |
I also get breakouts on my ankles and lower legs but when
I get this, my mouth clears up. Is that a common thing. |
|
|
............................ Eruta joined............. |
|
|
............................ bill joined............. |
|
drburkhart |
Mimi, Biotene makes a gum that
is one that many patients use. |
|
aupton |
discussion aid: type the name of the doctor to whom you
are addressing your questions, or simply type "doctors" then the
question |
|
DrsBrennanandFox |
Concerning dry mouth and lips, there are a number of
approaches to treatment. You can try to moisturize the lips with a hydrating
cream or ointment - like Aquaphor - or use a
capsule of vitamin E, opened and spread on the lips. usually, vaseline will coat the lips but not help with dryness. |
|
flower |
DR B How long can i take Nizoral |
|
Mimi |
Yes, I've used it as well as a dry mouth lozenge, but
regular sugarless gum seems to help more. |
|
drrees |
Patty, I don't think we should talk about specific
recommendations in this format because we don't know enough about your
situation. You could mention to your doctor however that there are some
studies that suggest that stronger topical steroids may be more effective. |
|
Tina |
DR BIs there any more hope of a
cure for lichus planus |
|
Tessa8898 |
doctors? I am using Clobetasol
Propionate Gel, 0.05% in my mouth for lesions. What do you think of this
medication? |
|
Pattyf |
Dr. Rees, thank you, I will do so. Thanks for this
opportunity to communicate! |
|
DrsBrennanandFox |
Concerning gums and candies to relieve dryness, be sure
that anything you use is sugar-free. In terms of sugar substitutes, look for
a product that contains xylitol. Xylitol will actually help prevent dental decay. |
|
|
............................ arkay joined............. |
|
j |
doctors, any treatment for LP of the fingernails |
|
Mimi |
Doctors, my oral surgeon has strongly suggested laser
surgery, but the discomfort he mentions helps me to refuse it. |
|
Mimi |
How do you feel about laser surgery?? |
|
drburkhart |
Flower, you are using it because of a fungal - candida infection in your mouth? Or is this external? How
long have you been using it? |
|
|
............................ ak joined............. |
|
|
............................ Valerie joined............. |
|
JC11 |
doctors, OLP is thought to take place during some kind of
life change from what I hear, is this due to hormone levels or what? |
|
ak |
Type hereakok,connect |
|
DrsBrennanandFox |
Mimi- are you talking about laser surgery for lesion
removal? |
|
Eruta |
Type hereDr.B What causes the
mouth to be so dry during sleep that it gets you up inthe
middle of the night? |
|
Mimi |
yes.... he would do one cheek at a time. He said he's done
a lot. ?? |
|
drrees |
In our clinic we have not had much success with laser
removal because the lesions tend to occur in multiple sites. |
|
DrsBrennanandFox |
OLP outbreaks are likely related to stressful episodes. |
|
|
............................ MM left............. |
|
DrsBrennanandFox |
We would not recommend laser removal of OLP lesions |
|
Mimi |
I agree. That's why I've refused. I also rinse often witth Biotene mouthwash. |
|
flower |
You are right i have a fungal
infection in my moulth I have taken them 14 days
200 mg |
|
drrees |
JC11- We have looked at hormonal levels but have not been
able to detect a correlation. |
|
|
............................ MM joined............. |
|
Tina |
Dr B My ? I had was what biopsy or test should be taken to
know if it is definitely lichus planus.
I have biopsys and they say it's like a lichus planus and they treat it
as such. Is there anything else I can do to get another opionion. |
|
|
............................ RAG116 joined............. |
|
|
............................ Kay left............. |
|
drburkhart |
Erutal, if your mouth is already
dry and you are a mouth breather, the dryness is increased. Have you tried
one of the biotene products that promotes oral
moisture before you go to bed? Also as Dr. B and Fox said, you can use Vit e or chapstick (black and
white on the lips) for dryness. |
|
ak |
the lichen plantis inside my
right lip is not healing this time. I use fluocinonide
gel .05% |
|
drrees |
Someone asked about Nizoral. It
is effective but you should be monitored for possible liver damage over time.
We prefer topical agents such as nystatin oral
suspension. |
|
JC11 |
Dr. Rees, for mid-life women is it changes in the body, or
probably the mental stress from the change in the body? |
|
flower |
Janice are you here to day miss your e mails and confort |
|
DrsBrennanandFox |
Tina- A biopsy is the most definitive test available. You
could ask that the slide be looked at by an oral pathologist. |
|
aupton |
flower - no crosstalking, please |
|
|
............................ Sue joined............. |
|
JC11 |
or both |
|
drrees |
JC11- I don't know but we do know that aging can affect
immune status in women a little more than men. |
|
Tina |
Dr B Again, is there any cure in site for lichus planus? |
|
Mimi |
I have also found warm salt water to help when I have a
particularly sore mouth. |
|
drburkhart |
Tina, the usual biopsy is a tissue sample that is viewed
under the microscope by an oral pathologist and at the same time another
tissue sample is viewed using what is called immumofluorescent
staining. If both confirm that it is OLP, you have certain diagnosis. |
|
|
............................ pam joined............. |
|
RAG116 |
i use biotend
toothpaste and mouth wash and it does not help the dry mouth |
|
JC11 |
dr. reesI am a young man,
apparently younger than most cases, I am trying to figure out if artificial increses in testosterone , or the drop off afterward may
have triggered this. |
|
DrsBrennanandFox |
The cause of OLP is still not clear, so a cure is still
some time away. However, it can be managed fairly well - in most cases. |
|
flower |
Aupton did you receive my email |
|
drrees |
RAG116. There really is not a foolproof material to treat
dry mouth. We like biotene because it is mild. |
|
ak |
ak I have been biopsied twice and both results showed lichen plantis. It will go away for a while but the fluocinonide gel .05 |
|
drburkhart |
Hi everyone, this screen is rolling really fast-this could
be the most number of people we have had on line. So if you are not getting
answers, it isn't that we are ignoring you, we just can't get to everyone
fast enough. |
|
RAG116 |
my olp is not going into remisson at all i have had it
for about a year more sores are coming up all the time |
|
Judah |
my dentist recommended the biotene
saliva substitue for my dry mouth, instead of the
mouthwash which I was using. After a few weeks i
was "cured" - my dry mouth during sleep has vanished, and not
returned, even though I have stopped using the product |
|
aupton |
I am not monitoring emails during the session. |
|
drrees |
JC11- To my knowledge there is no known relationship to
testosterone levels. |
|
JC11 |
thank you |
|
Mimi |
The gum that works best for my dry mouth is Extra Winterfresh. |
|
|
............................ Terri left............. |
|
|
............................ KAS left............. |
|
pam |
I was diagnosed with OLP over a year ago. This is what
helped me. A great dentist (like Dr. Brennan, Temovate
Gel, children's toothpast and extra soft
toothbrush. And....stay away from hot, spicy foods. |
|
DrsBrennanandFox |
Biotene products are for relief
of symptoms and to help prevent complications of dry mouth. They are not
treatments, as such. There are drugs used to treat the underlying causes of
some cases of dry mouth and others which will increase salivary function. |
|
drburkhart |
Mimi, that is interesting because wintergreen often
produces problems as a flavoring agents in most patients. |
|
|
............................ TW joined............. |
|
Tina |
Dr B If you have the biopsy or the immumofluorescent
staining done and your lichen planus is in
remission, can you still tell whether or not it is really lichen planus? |
|
Eruta |
use biotine oral tooth paste and
mouth wash and Biotine oral balance,to
no avail. Best befor i go
to bed I fill my mouth with my own saliva...helps somewhat..What
is biotine saliva substitute???? |
|
Tessa8898 |
I had a bite guard made & it has helped me much more
than the biotene or the chapstick,etc.It
keeps the dry tissue from sticking together. I wear it all night & most
of the day. |
|
|
............................ Roseanne joined............. |
|
drrees |
Eruta- biotene
is not a salive substitute |
|
JC11 |
doctors, what appears to be best to clear up redness along
borders of lips? |
|
drburkhart |
Tina, yes. But that does not mean that you cannot have
several things-diseases going on at the same time. |
|
RAG116 |
what is the best medicine to use for olp |
|
JC11 |
vitamin E or anything else? |
|
Sue |
Drrees: I am using Protopic (tacrolimus ointment)
during the 14-day period that I rest from the Temovate.
Is that an okay thing to be doing? |
|
Tina |
Dr B Do you think that dry mouth really adds to your
problem when you have olp? |
|
DrsBrennanandFox |
The natural course of OLP is to have flares and periods of
remission. You are probably never "cured" but may go long periods
without an active lesion. |
|
|
............................ Wilma left............. |
|
Judah |
it's called "biotene oralbalance" - mouth moisturizing gel |
|
Valerie |
Type here I was diagonised with
OLP over three years ago and it has not gone into remission. It subsides a
bit and then will reoccur with a vengence. I use
the biotene mouthwash and fluocinonide
gel.05 daily. I have hear that a dermotologist can perscribe a stronger form of fluocinonide.
Is it safe to use in my mouth? |
|
drrees |
Sue Protopic is a great drug for
oral lichen plnus but the FDA has some concerns
about its use. Discuss this with your doctor. |
|
|
............................ Wilma joined............. |
|
drburkhart |
Tina, yes I think so. So one is comfortable with a dry
mouth. Water is certainly important as well. By keeping the mouth hydrated
and avoiding caffine, you can do a lot on your own. |
|
|
............................ Nikkijo joined............. |
|
|
............................ art2 left............. |
|
DrsBrennanandFox |
Tina - yes, We do think that dryness adds tothe OLP problems. With a dry mouth the mucosa is more
sensitive and more susceptible to infection. |
|
|
............................ KAS joined............. |
|
JC11 |
Doctors, Is OLP related to lack of blood flow to the
mouth, or lips? |
|
|
............................ DiZel left............. |
|
|
............................ Bud left............. |
|
Eruta |
I believe protopic has been
black labeled. Any info on that? |
|
drrees |
Valarie yes there are other
topical steroids that are stronger than fluocinonide.
We use them often. |
|
Nikkijo |
o.k. I am not sure whom I am speaking with, but I am here
to discusse my Erosive Oral Lichen Planus |
|
ak |
ak can lichen plantis turn into cancer? |
|
Sue |
Does SjS cause olp or vice versa? |
|
|
............................ DiZel joined............. |
|
drburkhart |
Everyone, if we miss your question, email me after the
session and I will make sure we answer you. I can forward emails to Dr. Fox
and Brennan |
|
Tina |
Dr B does olp affect your nails.
I have had two toe nails that have come off. If so what can you use on your
nails? |
|
aupton |
nikkijo - the format is
questions to the doctors who will answer as they can. |
|
|
............................ DiZel left............. |
|
DrsBrennanandFox |
Sue- There is no evidence that OLP causes Sjogren's or that Sjogren's
patients have an increased incidence of OLP. They can occur together, but
that doesn't mean they cause one another. |
|
drburkhart |
Tina, yes you can have lichen planus
on the nails, scalp and vaginally. Essentially, anywhere there is lining
mucosa as well. |
|
Nikkijo |
I have had my EOLP for 15 yrs now and I see Dr. Huber in
San Antonio |
|
|
............................ Marta left............. |
|
RAG116 |
i take clobetasol
propionate for my olp and it saids
external use only is the ok to put in mouth |
|
drrees |
Sue, as far as we know sjogrens
does not cause olp or vice versa. However, the
dryness one experiences with Sjogren's can make the
tissues more sensitive ot OLP if it happens to be
there. |
|
|
............................ art2 joined............. |
|
Nikkijo |
My condition worsens yearly |
|
JC11 |
Doctors, is OLP directly related with lack of blood flow
to the mouth? |
|
Tina |
Dr B What can you use on your nails? |
|
DrsBrennanandFox |
Clobetasol can be used in the
mouth. |
|
Eruta |
I have half of my littli pinkie
nail that has gone. Any help to restore? |
|
RAG116 |
is it the best medicine for olp |
|
Roseanne |
When I sleep I automatically suck the air from my mouth.
Does that affect OLP? |
|
Nikkijo |
I am misserable for i am not able to go to my doctor for over a year now |
|
drrees |
RAG116 There are hundreds of studies that indicate it is
safe if used properly and monitored. There is not enough time to discuss
appropriate use right now but contact us and we can talk about it. |
|
DrsBrennanandFox |
JC11 - We are unaware of a connection between OLP and
reduced blood flow in the mouth. |
|
|
............................ Claude left............. |
|
|
............................ marjree left............. |
|
flower |
This is moving fast Dr Burk did I miss your answer about
length of Nizral |
|
Tina |
Dr b Did I miss your answer on what you can do to help
your nails? |
|
JC11 |
Whenevr I work out or blood
rushes to my head my OLP seems to improve |
|
drburkhart |
Tina, we have a dermatologist, Dr. Glass, at the stomatology center. I do not think that elidel is being used, but if you email me after the
session, I will ask her to respond to you. |
|
RAG116 |
can olp turn into cancer |
|
Judah |
Doctors - I have seen no mention of dexamethsasone
here. What are your feelings and experience about it? |
|
|
............................ marjree joined............. |
|
|
............................ pjp1234 joined............. |
|
Eruta |
WHAT IS SJO. AND IS ALL DRY MOUTH CAUSED BY THAT? |
|
Nikkijo |
I use all of the meds and no cinnamon products, no
carbonated drinks, spicy, hot ect... |
|
Mimi |
I've found it important to stick to Biotene
toothpaste, or Orajel for toddler s... it contains
no sodium laurel sulfate. I've also had problems the few times I"ve tried a whitening toothpaste. |
|
drburkhart |
Tina, I responded earlier as well |
|
drrees |
flower, I responded to your question. I think that you
should avoid long term use if possible unless your liver fuction
is tested often. |
|
DrsBrennanandFox |
Roseanne - mouth breathing is very common, particularly at
night, and can make dryness worse. |
|
Tina |
Dr B Does olp turn into cancer? |
|
RAG116 |
what is the best medicine for olp |
|
Nikkijo |
I can not open wide enough for a sandwitch
for the pain of ripping my mouth, my lidocine is aony temporary and when its gone i
fell the pain |
|
|
............................ Bud joined............. |
|
|
............................ JW left............. |
|
|
............................ Coro left............. |
|
|
............................ rae1 left............. |
|
|
............................ bill left............. |
|
DrsBrennanandFox |
SS, SjS, etc. are all
abbreviations for Sjogren's syndrome, an autoimmune
connective tissue disorder that causes dry mouth and dry eyes and other
symptoms. |
|
ak |
ak what should you look for if olp does cause cancer? |
|
JC11 |
Dr. Rees, can LP affect the inside of the nose, and lead
to extreme dryness and even bleeding? |
|
Eruta |
oNE GOOD NOTE, aFTER 3 YEARS M THE lp ON MY
BACK HAS DISAPPEARED |
|
drrees |
Judah, we havent had much
success with dexmethasone. It is a good drug but used
as a mouth rinse it apparently washes out of the mouth too quickly. |
|
Nikkijo |
is there more I can do to keep the canida
infection away |
|
Judah |
thanks |
|
|
............................ rae1 joined............. |
|
Bud |
Type hereHi, I'm Bud. The
message said "Disconnected. Connection timed out. Is the chat room over? |
|
drrees |
Bud, do you have a question? |
|
Nikkijo |
is there a stronger longer lasting lidocain
out there |
|
flower |
Thank You Dr Burk have another question can you have LP in
pubic area |
|
RAG116 |
my question about medicine wasn,t
answered |
|
drburkhart |
Tina, it is controversial. Any open lesion in the mouth
may allow pathogens to enter the body. So it is difficult to pin point a
direct cause. Most of the literature supports the fact that
erosive(ulcer-like) lesions tend be more problematic in nature. So keeping
lesions under control is crucial. The oral cancer rate from OLP is very low. |
|
|
............................ Marta joined............. |
|
DrsBrennanandFox |
Nikkijo- I often have my
patients use chlorhexidine concurrently with the
use of topical steroids. This has controlled the side effects of fungal infection
from a topical steroid well. |
|
|
............................ Pattyf left............. |
|
|
............................ ken left............. |
|
|
............................ arkay left............. |
|
drrees |
RAG116. Ask you question again |
|
RAG116 |
what is the best medicine for olp |
|
Nikkijo |
i have been told that the
steroids cause my infections and am no longer allowed to use them |
|
|
............................ Coro joined............. |
|
RAG116 |
i have also been told steriods make it worse when it comes back |
|
Eruta |
ANY RESEARCH BEING DONE?????????????? |
|
JC11 |
Doctors, can LP affect the inside of the nose? |
|
flower |
May Sue leave her email address |
|
aupton |
eruta please turn your CAP LOCK
OFF thanks |
|
Nikkijo |
I have perdoxil for the
bacteria, and bioteen products |
|
DrsBrennanandFox |
Nikkijo- Yes steroids can often
have a side effect of fungal infection, but with the appropriate anti-fungals the use of steroids is possible. |
|
Tina |
Dr B Is there any blood test for me to take to see if I
may have another problem like my immune system, etc. Since I have been
diagnosed with like a licha planus
and have lost two toe nails? |
|
drburkhart |
Tina, you can have lp in the
genital area. Many women go to the OBGYN and a connection is never made with
regard to the oral lichen planus and recurrent
yeast infections vaginally. All women should report this fact to their OBGYN. |
|
drrees |
There is no single best answer for that. We try to use the
safest topical steroid that will keep it under control. If that doesn't work
we go to something stronger but these is an increased chance of yeast
infection in the mouth. |
|
|
............................ j left............. |
|
|
............................ vic joined............. |
|
|
............................ arkay joined............. |
|
Nikkijo |
great! because i am really tired
of the moment to moment pain of talking swallowing or even smilling |
|
DrsBrennanandFox |
Tina- I would have an internist evaluate you for symptoms
consistent with other autoimmune disease. An ANA (anti-nuclear antibody) test
is a start for a screen. |
|
JC11 |
Doctor Burkhart, can LP affect the inside of the nose? |
|
RAG116 |
i have been to different drs. and they all prescribe different medicine for me
that is why i want to know what is best |
|
MM |
drs. has excessive use of Splenda-sweetend soft drinks been linked to OLP outbreaks?
how about hi-protein diets? |
|
|
............................ Kitty joined............. |
|
Bud |
Doctors: I am 74 years old, male, good health. I have had olp for one year. The biopsy was "inconconclusive". My periodontis
is not prescribing any treatment at this time. I was on flurocinide
for a couple of months. I have no pain and I have plenty of saliva (no dry
mouth) but my gums and inner cheeks look awful. Gums swollen at teeth line
and innner cheeks have white coating, and spiderweb-like lines on one inner cheek. Does this tell
you anything that I need |
|
DrsBrennanandFox |
RAG116- All patients respond differently to medications. I
use temovate gel in many of my patients, but with
other lidex or dexamethasone
elixir is more appropriate. |
|
Nikkijo |
the erosion is continues from the lower left all around to
the left of my inner lip, down my throat, under my toung |
|
RAG116 |
since it is an autoimmune disease does that mean i will catch many illnessea
please answer |
|
drrees |
I think we should all remember that sometimes something
like a specific medication can cause a so called lichenoid
reaction. There is a list of drugs available on the website that names some
of those. If that is the case then stopping the causative medicine can stop
the olp. |
|
drburkhart |
JC11, I am trying to think if I have seen anything
directly related to the nose and I can't think of a single article. However,
the lining of the nose would be vulnerable to Lp
just as any other tissue would be, I think. I get emails from patients who
have it all over the body so it would stand to reason that you could. |
|
DrsBrennanandFox |
RAG116- No. There is no evidence as OLP leading to other
autoimmune conditions. |
|
drrees |
RAG116- The autoimmunitity of olp appears to be strictly local |
|
|
............................ j joined............. |
|
Eruta |
drs. :have been using Vanicream over my entire body .seems to help.Any comment? |
|
pjp1234 |
Type heredrs> My
dermatologist puts me on an antibotic,prednisone
and protopic along with betaamethasone
which always gets my symptoms under control. Is there any danger with any of
these treatments. |
|
Roseanne |
Other than medication, what can we do to reduce/help OLP? |
|
Nikkijo |
i read earlier the question that
someone placed before ya'll "does this cause cancer?" even for as
many years that I have had it |
|
Tina |
Dr B is there any other cream to use of olp other then triamcinolone acetonide. That is the hardest stuff to apply? |
|
JC11 |
DR.B, my nose gets so dry, and even bleeds sometimes, also
I hear what seems to be liquid in my right ear, not the kind you get after
swimming, could all of this be related? |
|
j |
Dr. is there any one Speciality
that handles olp and op. |
|
Nikkijo |
I so agree with Roseanne |
|
KAS |
I take over the counter meds for sinus problems. this
seems to cause my lp to get worse. Is this because
these meds have a tendency to dry my mouth even more? |
|
drrees |
Eruta, I don't know what vanicream is but it sounds like a soothing lotion. If so
it may help symptoms but not be an effective treatment. |
|
pjp1234 |
Does dry mouth always accompany OLP. I don't seem to have
that problem |
|
Tina |
Dr B I have same ? as above if there anyone specialist
that really knows a lot about olp? |
|
drburkhart |
JC11, I probably missed some of your previous posts but I
hope you are seeing a really good ENT person to deal with some of this. You
should be able to be treated for most of this. |
|
Eruta |
Did not see an answer to my comment re protopic
being Black boxed? |
|
drburkhart |
Tina, yes there are. Email me and I will find one. |
|
drrees |
i-dentist, oral medicine
specialists, periodontists, oral surgeons, dermatologist |
|
drrees |
Eruta, what id you want to know? |
|
JC11 |
I talke to Dr. Rees for the
first time a few weeks ago in person, I am hoping we can releive
these symptoms. |
|
RAG116 |
i need a dr. who knows something
about olp i am finding
out many know nothing about it |
|
Judah |
after seeing 5 doctors, including internists, dentists, dermaltologists, it was a neck and throat surgeon who
eventually diagnosed my OLP |
|
drburkhart |
One point for everyone, we discourage the use of alcohol
and alcohol mouthwash for all mucosal disorder patients. |
|
Nikkijo |
My Dr. at the Texas Health Sciences Center of San Antonio
is the only specialest that I have found, and I
adore him, but he is over 350 miles away |
|
|
............................ Tessa8898 left............. |
|
|
............................ pam left............. |
|
DrsBrennanandFox |
pip1234- No, dry mouth does not always accompany OLP, but
if dryness from a medication side effect or Sjogrens
is present then OLP may be more sensitive. |
|
|
............................ Marta left............. |
|
Eruta |
is it true that protopic has
caused cancer in some users? |
|
RAG116 |
it is so frustrating that they don,t
know can if affect my throid where a just had a
nodule checked for cancer |
|
pjp1234 |
My olp started within 3 weeks of
a dental cleaning. Any connection there? |
|
RAG116 |
mind started with a tooth restoration anything to do with
it |
|
JC11 |
Dr. Rees, if my mouth looke like
allergies but the test results were negative, what are the next set of tests
or possibilities? |
|
|
............................ tessa8898 joined............. |
|
Nikkijo |
I have turned into a health nut and turned for help at the
M.H.M.R for stress maitanance |
|
ak |
ak i
have had olb after teeth cleaning. |
|
drburkhart |
pip, do not let the hygienist use an air polisher on you
or abrasive dental products when you have a cleaning. We have some guidelines
posted on the site which address this issue. |
|
aupton |
Everyone. The doctors will answer all the questions they
can in the hour. If you miss an answer, the transcripts will be posted tommorrow on the web site. |
|
|
............................ Valerie left............. |
|
|
............................ TW left............. |
|
|
............................ Wilma left............. |
|
Mimi |
Doctors, thank you for your time - this has been very informative.. |
|
Nikkijo |
o.k. thanks |
|
|
............................ Wilma joined............. |
|
ak |
ak can stress cause an episode
of olp? |
|
JC11 |
Thank you! |
|
RAG116 |
doctors thankyou sooooooo much but would like to talk further sometime |
|
drburkhart |
Everyone, don't hang up yet. We still have time. |
|
DrsBrennanandFox |
AK- Many of my patients show a strong relationship with
stress and OLP |
|
|
............................ TW joined............. |
|
drrees |
Eruta- That is an unanswered
question. The FDA has decided to place a warning that it might be assoicated on occasion with cancer but there is not
enough data to know one way of the other. It will take a long time to find
out so FDA suggests that it only be used for specific purposes if other treament fails. We have stopped using it in our clinic
until we know more but that is an individual decision. Discuss this with the
doctor who prescribes it for you. |
|
|
............................ Valerie joined............. |
|
RAG116 |
i am not what about mt throid nodule is it related olp |
|
|
............................ M joined............. |
|
Nikkijo |
I thank God that ya'll even take care to notice to us! |
|
flower |
Dr.Burk I'm wondering since
someone mentioned it I have been taking Claritin fo
almost a year and now my OLP is back. I have had no problem for 2 years |
|
JC11 |
Dr. Rees, what is an email or contact # I can get in touch
with you at? |
|
aupton |
Everyone. Still 15 minutes for the doctors to be with us.
Afterwards, I will leave the room open for about 5 minutes for exchanges with
each other. |
|
pjp1234 |
Didn't get an answerabout my drs treatment and the possible dangers of prednisone and protopic |
|
Eruta |
Any support groups in the flesh in Arizona? |
|
|
............................ Sue left............. |
|
Tina |
Dr b any thing else other then triamclnoione
dental paste. Hard to apply and feels like glue in the mouth? |
|
drrees |
JC11- my e-mail address is on the web site or contact Dr.
Burkhart. |
|
Nikkijo |
o.k. I will take my leave then, just the one question is
the most important to me is- |
|
JC11 |
ok thank you |
|
MM |
drs; any connection w/Splenda consumption? |
|
|
............................ Sue joined............. |
|
pjp1234 |
Any support groups in metro DC area? |
|
drburkhart |
ak, yes I think stress is reall a key factor. If you think about it, most patients
can tell you that the outbreaks occur during stress related times. Stress
reduction is good for anyone. We as a society are over worked and under great
stress! Try massages, yoga, tai chi and be good to yourself! |
|
DrsBrennanandFox |
Tina- There are many other steroid formulations. Please
check with your doctor. |
|
|
............................ JC11 left............. |
|
tessa8898 |
Is anyone else having a hard time keeping a job? |
|
Bud |
Can you give me the name of a good tooth paste? I tried Biotene but it burns a little. Now I am trying a
children' s tooth paste called "Dr. Burts." |
|
RAG116 |
can the effects of some dental work hurt olp |
|
drburkhart |
Tess, job stress is a big
stressor! And, the loss of a job can even be worse. |
|
|
............................ JW joined............. |
|
flower |
how about Splenda, bad? |
|
RAG116 |
like the mercury in some fillings |
|
Mimi |
I think an excellent toothpaste is Orajel
(toddler) training toothpaste... contains no sls |
|
Roseanne |
Drs., these sessions are most helpful. Thank you. |
|
|
............................ art2 left............. |
|
Nikkijo |
i have had mine for 15 years and
only one biopsy to check for cancer, that was 2 years ago can it still occur |
|
Nikkijo |
? |
|
DrsBrennanandFox |
Bud- Many tooth pastes have flavorings that people react
to, I would make sure at minimum the toothpaste has fluoride. If you have
sensitivity, avoid tartar control and whitening toothpastes. |
|
Eruta |
Any info re the incidence of LP throughout the USA. |
|
Nikkijo |
God Bless, bye |
|
Tina |
Dr B what is a good cream to apply daily? I may have
missed your answer. Triamcinolone Acetonide dental paste is what they prescribed. Like I
said feels like glue> I'm hoping you can answer this ? |
|
Sue |
drs: Is there any tooth
whitening product or procedure that will not cause deterioration? |
|
drrees |
Bud, I don't know about Dr. Burts.
We try to tailor the toothpaste to each patient's particular situation so I
don't know quite how to answer that. You might try regular Colgate however,
with no peroxide, tarter control or whiteners. |
|
aupton |
Thanks, Nikkijo |
|
j |
any info re the incidence of olp
& lp in Canada? |
|
tessa8898 |
DrB, I Can't find a job that
will allow me to have water at my desk, etc. I was a AVP in the banking
industry for over 25 yrs. |
|
Eruta |
What is the incidence of olp andlp in the US. Anyone know? |
|
|
............................ art2 joined............. |
|
drburkhart |
Nikkijo, yes it can. You should
be monitored by your doctor and rechecked periodically. If changes occur, a
new biopsy may be needed. Oral photographs that can be compared are a really
good idea. No one remembers exactly what the lesion looked like 6 months ago. |
|
drrees |
Eruta and i-
probably somewhere between 1 and 2% of the adult population |
|
|
............................ marjree left............. |
|
DrsBrennanandFox |
I am not aware of a connection of Splenda
and OLP, but there may be other health concerns. |
|
RAG116 |
why don,t most drs. know anything about olp |
|
|
............................ marjree joined............. |
|
drburkhart |
J-I get emails from a lot of people in Candada-they
are not immune. |
|
RAG116 |
it is so frustrating |
|
Tina |
Dr B Good ? above ? was good incidence in Canada and what
do they use for treatment? |
|
RAG116 |
or how to treat it |
|
Tina |
Dr B How long has lichus planus been known? |
|
pjp1234 |
Is lichen planus a new disease
and is that why it takes so many drs to diagnose. |
|
drrees |
RAG116- most doctors don't get a chance to deal with many
patients with olp. But more and more are learning
about it. |
|
Nikkijo |
i can no longer open my mouth
wide enough for another biopsy, the tissue heald
-kind of- but the flex is all but gone |
|
aupton |
Everyone, the doctors will be with us for another 10
minutes. |
|
RAG116 |
ok thanks |
|
|
............................ rae1 left............. |
|
drburkhart |
Tina, they are using the same things we do. |
|
DrsBrennanandFox |
Nikkijo- Was this due to
scarring? |
|
pjp1234 |
I feel like the lining of my mouth has shrunk. Is that
possible? |
|
RAG116 |
why is olp just coming out now
and what causes it |
|
|
............................ Valerie left............. |
|
|
............................ rae1 joined............. |
|
Nikkijo |
i do believe so |
|
Tina |
Dr B I hope you answer this ? before you leave, how long
has lichus planus been
diagnosed in people. People must have had that years and year ago. How did
they treat it? |
|
JW |
Doctors, doesn't using lidex gel
thin the skin on the cheeks? |
|
drrees |
Tine and pip1234. Lp was first
recognized about 150 years ago. It was only recognized as occurrintg
in the mouth about 50 years ago. |
|
Nikkijo |
they fixed one of my teeh with
pins because all of the tissue has eroded |
|
RAG116 |
i feel so helpless that no one
can help me for this miserary in my mouth it is
depressing |
|
Tina |
Dr B how did people treat it then? |
|
Nikkijo |
around the gum line |
|
drrees |
JW, yes on skin, maybe on mouth tissues but that has not
been a problem for our patients |
|
DrsBrennanandFox |
JW- One potential side effect of topical steroid is a
mucosal atrophy, which may lead to thinning of the tissue in theory. |
|
Nikkijo |
if feel like hard dead skin |
|
|
............................ Coro left............. |
|
Tina |
Dr B Is there a lot of research going on regarding olp and the cause and treatment of it? |
|
drburkhart |
Tina, sorry I lost you. Are you talking about the people
in Canada? |
|
|
............................ Coro joined............. |
|
Coro |
Dr. B. - Can you reccomend a
resource that I can share with my GP, Cardiologist, dentist and other health
practitioners? |
|
aupton |
Everyone, please begin concluding your conversations. The
doctors will be leaving in 5 minutes. No new questions, please. |
|
Bud |
I am taking 1000mg of Black Currant Oil that contains
Omega 3 (ala). 6(gla), and 9 in it. Is there any
information about the benefits of this? |
|
RAG116 |
it seems the doctors in india
know a lot about olp |
|
Sue |
drs: thank you for your time |
|
drrees |
Bud-no |
|
DrsBrennanandFox |
Tina- More research is occuring
in the field of OLP, as more in found out about the pathophysiology
of the condition. |
|
RAG116 |
yes doctots thankyou
very very much |
|
Mimi |
Again, Thank you, Doctors!! I wish you all a wonderful
day! |
|
Nikkijo |
again thatnks even if q's were not answered this helps a whole lot just to
vent, THAKNS bye |
|
Tina |
Dr B Thanks for this session and I hope that by the next
session we will have more on a cure. I hope it's not just wishful thinking.t |
|
|
............................ Mimi left............. |
|
Nikkijo |
amen Tina |
|
JW |
All doctors, thanks so much. This helps so much. |
|
|
............................ vic left............. |
|
|
............................ arkay left............. |
|
|
............................ Kitty left............. |
|
|
............................ marjree left............. |
|
|
............................ arkay joined............. |
|
flower |
I will leave my new e mail address so anyone has the same symtoms as I do can contact me after reading the
transcript Thanks to the Drs I get a lot from this chat |
|
drburkhart |
Corol, we have some articles
posted on the site and there are several new ones that appeared in the J of
oral pathology and oral med. by Dr. Lodi, et al email me and I will give them
to you. |
|
Bud |
Thanks Drs. Rees, Burkhart, Fox, and Brennan. |
|
Eruta |
Misery likes company so thank you for this |
|
drburkhart |
Thank you everyone for the great responses. Email me and I
will get back to you. |
|
aupton |
Everyone, the transcripts will be on the website tommorrow. Drs. Rees and Burkhart's email addresses are
on the Web site. Thanks so much to our guests, and please begin signing off
now. |
|
rae1 |
rae Thanks for very informative
session |
|
RAG116 |
hope we can do it again soon |
|
flower |
rclinda@ psci.net |
|
RAG116 |
it went aweful fast |
|
Tina |
Dr B When is next session? |
|
|
............................ TW left............. |
|
DrsBrennanandFox |
Thanks everyone for your interest and outstanding
questions. Be well. |
|
drburkhart |
Thank you Mike, and Phil and talk to you soon, Terry. |
|
|
............................ KAS left............. |
|
aupton |
Next session will be announced on the web site. |
|
|
............................ rae1 left............. |
|
|
............................ Judah left............. |
|
|
............................ flower left............. |
|
aupton |
Sign up for the email announcements on thje
Web site |
|
|
............................ Bud left............. |
|
|
............................ JW left............. |
|
|
............................ arkay left............. |
|
drrees |
Mike and Phil. We really appreciate your participation. i hope you enjoyed it. |
|
pjp1234 |
To those who have lost nails, so did I but they are
growing back after just a few months so hang in there. |
|
|
............................ Coro left............. |
|
|
............................ flower joined............. |
|
|
............................ Nikkijo left............. |
|
aupton |
pip no cross talking, thanks. |
|
pjp1234 |
Thanks to all the Drs for their time |
|
|
............................ Roseanne left............. |
|
|
............................ flower left............. |
|
aupton |
Doctors: thank you so much for your participation. |
|
|
............................ tessa8898 left............. |
|
|
............................ drrees left............. |
|
|
............................ DrsBrennanandFox left............. |
|
|
............................ Tina left............. |
|
|
............................ Sue left............. |
|
|
............................ drburkhart left............. |
|
|
............................ Eruta left............. |
|
j |
pjp thanks for the info on nails |
|
|
............................ RAG116 left............. |
|
|
............................ MM left............. |
|
|
............................ pjp1234 left............. |
|
|
............................ M left............. |
|
|
............................ j left............. |
|
|
............................ Wilma left............. |
|
aupton |
ak, thanks for joining us.
Please click the log off button to exit the room. Hope to see you next time. |
|
|
............................ art2 left............. |
|
|
............................ aupton left............. |
|
|
............................ aupton joined............. |
|
|
............................ ak left............. |
|
|
............................ aupton left............. |
|
|
.............. Log
stopped at Thu Sep 15 11:36:51 PDT 2005 ........... |
|
|
.............. Log
on 050915 started at Tue Nov 01 09:38:35 PST 2005 ........... |
|
|
............................ aupton left............. |
|
|
.............. Log
stopped at Tue Nov 01 09:39:25 PST 2005 ........... |