| .............. Log on jun2007 started at Tue Jun 19 11:11:59 PDT 2007 ........... | |
| Irene | It's aloe juice. 4 tablespoons in a glass, then I swish it around my mouth, then drink it. |
| MaryC | Biotene and Sensodyne Cool Blue no sodium laurel sulfate |
| ml1 | I also had LP in my vagina many years ago, it's not there any longer, but continues at the buccal mucosa (in my mouth.) |
| trees | Ann, biotene doesn't have SLS in it but plain baking soda is ok. Just don't add peroxide |
| Dee | Type hereBiotene toothpaste doesn't contain sodium lauryl sulphate, and *does* contain flouride (which plain baking soda doesn't have). |
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| Anley | I read this is caused by a combination of dental materials. I've got enough; I'm pretty old! |
| Ann | Biotene comes in mint am trying to stay away from mints won't they irrate and don't want floride either is baking soda ok |
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| lg | Dr. any thoughts on the oral fluconazole connection? |
| Ann | ok on the baking soda thanks |
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| Ann | its just salty |
| drepstein | Local therapy is preferred for local presentation of oral lichen planus when possible. |
| trees | Anley, dental materials are a problem sometimes but it should be possible to find that out with some allergy testing. |
| Irene | There is another product, mouthwash "The natural dentist" with a lot of aloe, it burns but after a few days also helped with the lesions. Do believe the juice worked the best so far... |
| Glen | Biotene does come in a non mint flavor but it has to be ordered from the pharmacy |
| Ann | what do you think is the biggest cause of OlP |
| monmais | My mother's vaginal walls are fused together. The only opening left is about the size of a Q-tip. |
| drepstein | oral fluconazole is one of the antifungal agents that may be used to treat secondary candidiasis (oral yeast intection) that may follow use of treatment of for lichen planus. |
| oklahoma38 | your mother may have lichen sclerois |
| Dee | Has your mother asked her gynecologist for Estrace cream? It can help with the fusing. |
| trees | Monmais, that sounds like a similar disease called lichen sclerosis instead of LP |
| olwen | I buy the non-mint Biotine at Wal-Mart and it helps the lesions somewhat. |
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| oklahoma38 | affectes the vagina |
| Anley | Are the dr.s giving any input? |
| drepstein | the primary etiology (cause) of lichen planus is unknown. |
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| rich | In the discussion relating to teeth whiting, the cause of my problem has been focused, as far as we can tell, to my falling asleep with the tooth whiting gel still in my mouth. The combination of old metal fillings and the peroxide in the gel has become the most likely cause of my problem. |
| reijo | does lp ever go away- or are you stuck with it forever |
| ml1 | Monmais, has your Mom been on systemic steoids? |
| drepstein | LP may " |
| Loraine | My dentist warned me against brushing with baking soda. Are you saying that it's ok? |
| trees | rich, If that is the case the lesions should subside not too long after you have stopped the whitener |
| Missy | I never used a teeth whitening product before or after that...I recall it was a gel whitener in one of those mouth trays |
| Anley | Dr. Epstein, has there been any research in metal combinations? |
| oklahoma38 | they were giving testosterone cream for Lichen scllerosis I am now using betasol ( cortisone cream) |
| Dee | LP can go into remission. It tends to be more stubborn when it affects mucosal membranes (mouth, vagina) than the skin. |
| drepstein | burn itself out", much like rehmatoid arthritis, but it can fluctuate over time, and persist. |
| Irene | Dr Epstein, do steroid injections also help? Or is it the contact that works? |
| aupton | folks, please do not cross chat -- ask the drs your questions and wait for a response. Cross chatting is one reason the screens scroll away too quickly. Thank you. |
| maryjo | Is there a test for steroid resistant OLP |
| drepstein | For local lesions that persist intralesional injection of steroids (and other agents) may be effective. |
| trees | Baking soda is not the best since it doesnt have much body but it is ok. It is a problem with irritation if you mix it with salt or peroxide |
| Dee | Doctors, has there been any research into hormonal fluctuations and LP? |
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| rich | interesting, because i have had it for 5 years now - the doctors suggestions was, once it started, it could continue to run it's course. |
| drepstein | Research in metal combination are limited. |
| Missy | I have taken steroid injections for 8 years every 3 months for my OLP |
| Irene | How long would the effect last after an interlesional steroid injection? |
| reijo | what is best to use to brush the teeth- if baking soda is not recommended |
| trees | Dee. we did a study regarding that several years ago and could not find a connection |
| Anley | Dr. Epstein, Why? |
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| Ann | interesting question on the hormonal question could that couse OLP quitting your hormones, I got my OLP right after I quit mine |
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| drepstein | symptomatic lichen planus should be managed; and this includes followup to rule out progress of disease and to rule out progression to cancer. |
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| Anley | Dr. Epstein, Why are metal studies limited? |
| maryjo | Are there some strains of OLP that are steoid resistant |
| scott | Doctor, what types of medicine can a person take if they have determined that anti-inflamatory medications, such as Naprox and Ibuprophin cause (trigger) flare ups? Are there other homeopathic remedies or anything that you might suggest for pain? |
| drepstein | studies are limited, the primary work is ongoing now at Univ of Washington. |
| trees | reijo, any toothpaste that doesn't burn your mouth is probably ok but if your mouth is really sore biotene without mint is a good choice. |
| drepstein | Studies are limited by funding opportunities. |
| Anley | Dr. Epstein, I'm old and went to the dentist since I was small I have a combination of metals in my mouth now. |
| reijo | so is baking soda fine for brushing? |
| maryjo | I use Biotene - its the only one that works for me |
| Irene | Dr. Epstein, How long would the effect last after an intralesional steroid injection? |
| dab | Type here |
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| oklahoma38 | Dr Epstein: dcan dentures cause Severe OLP |
| maryjo | about 3 days |
| trees | scott, there are a number of pain meds that are not likely to cause a problem including tylenol. |
| Dee | Another question for the doctors: I was seeing a GI specialist who got me to experiment with foods that might be causing intestinal irritation, and eventually cut out tomato entirely. When I did that the LP seemed to get better -- although it isn't totally absent. After almost a year without tomato, I've started to notice that maybe my LP flare-ups are related to "accidental" tomato ingestion (which happens when people don't take seriously my insistrenace that I canno |
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| Miles | I have had OLP about 6 years, still present, no discomfort, can feel the rough areas with my tonge, I use regular tooth paste, but gave up alochol based mouth wash, are others this fortunate? |
| drepstein | To review the potential of differnet detnal materials in OLP in your case, this can include assessing the location of the tissue changes, and potentially skin patch testing-this is the work currently being conducted in Seattle. |
| Anley | Dr. Epstein, Baylor is a big school with lots of students, you should be able to fund some of these things. |
| reijo | my lp is quite manageable- it is just a minor irritation |
| Ann | my lichen planus got bad when I had a pementant partial in so I use a my temporary one an my roof of my mouth is ok so it must irrate the the mouth then some metals correct |
| peg | Dr. does olp affect the lungs |
| maryjo | I have tried diet I really can't eat most foods, I'm on Imuran and clobetisol I've had theis for 15 years and nothing so far has helped |
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| Ann | We shouldn't use regular toothpaste correct as it has Sodium Lauryl Sulfate in it and can cause cancer correct |
| Nathan | I have had it for about 6 months with no major problems yet. I was wondering what might have caused the onset of this. I have also had joint pain and chest pain; could this be related? |
| trees | ann, that may have been due to the partial not fitting well or possibly a metals allergy. Do y9ou have dry mouth? |
| monmais | My mother has also had to have her esophagus stretched twice as it is closing up too. She no longer sees an ob/gyn due to the area sensitivity. We have exhausted all of our local (Memphis, TN) resources, as they have tried years of misc. treatments on her to no avail. Drs. where can I take her where the most research has been conducted? |
| drepstein | Funding for studies is limited by NIH-these types of studies are difficult and require funding to run correctly-patient support groups may play a positive role in increasing awareness of the problem and potentially increasing the interest of NIH to fund. |
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| tomsunde | Would dental implants have the same metal ramifications? |
| olwen | Dr. Epstein: I have olp (20+ years) and have two dental implants and full dentures. After having all this done, my lichen planus has become worse, i.e., more leasions and soreness (redness). |
| Ann | Don't put any gold in our mouths correct can cause OLP |
| trees | tomsunde, dental implants are made of titanium and fortunately an allergy to it is very rare. |
| Dee | Dr Rees, I have a nickle allergy. Am I correct in thinking that there is some belief that metals may have something to do with LP? |
| dab | I had to have my teeth removed after having LP for 25 years. I had enough bone on my lower jaw for my dentist to try dental implants to which my lower plate will snap. Has anyone else had dental implants done and what has been the outcome. |
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| Nathan | Is it true that OLP can cause heart problems? |
| trees | Dee, sure. Do you have any fillings in your mouth that contain nickel? |
| jopalis | I have gold crowns but have had them many years.... LP just started a year ago. |
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| Anley | Is there someway I can get a print out of this discussion? |
| rich | Any issues with Gold fillings? |
| jopalis | Mercury in my fillings....old ones |
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| Ann | Isn't it true the metals in our mouth over a period of time can cause OLP it just takes a trigger |
| drepstein | Regarding consultations-I suggest contact with local dental programs or dermatology when there is sk8in involvement. If local resources are extinguished, then travel may be worthwhile to referral centers-hopefully the local resource can direct you to the next closest institution with experience and interest. |
| aupton | the printout of the discussion will be posted on the web site within the next couple of days |
| jopalis | OK...this is moving fast and doesn't seem to be any protocol.... Can we get printout? |
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| Dee | Dr Rees -- no. I have nice hard teeth and had only ONE metal filling, which I had removed about six months before I first developed LP. I have two tooth-coloured non-metal fillings now. |
| Anley | Ann, I had a gold cap put in my mouth and I feel certain it is a combination of metals. When the dentist told me there was no difference between a gold or silver cap. |
| Nathan | Is OLP linked to an auto-immune disorder? |
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| Irene | Nathan, as far as I understand it, OLP IS an auto-ummune disorder |
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| Ann | I am positve metals have something to do with my OLP |
| trees | Anley, you can review the discussion tomorrow on the website |
| karenz | KARENZ -WOULD HAVING TEETH BLEACHED BY ZOOM WHITENING BE HARMFUL IF YOU HAVE LICHEN PLANUS |
| Ann | and my dr in Seattle is too |
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| drepstein | The preliminary findings of OLP and dental materials, suggest that in a small percentage of cases this may be related to metal-amalgam and gold. We do not have data on tooth colored materials, but porcelain should be well tolerated. |
| maryjo | I thouyght LP is an auto immune disorder |
| Ann | Mydr also says the blood pressure meds do this too correct |
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| drepstein | Blkeaching may certainly irritate tissue-I am not aware of studies assessing the impact of bleaching on cause of LP-it may however, increase sensitivity that leads to awareness of tissue change. |
| jopalis | what about hormone therapy |
| trees | karenz, it will probably make the olp worse for a few days if any gets on your gums and you have gum olp |
| reijo | on a daily basis what are the best ways to manage lp |
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| Ann | isn't it a good idea for us to have metal tests I did and am allergic gold and other metals |
| MaryC | Trying Clobestasol .05% propionate gel / rinse on our patient - what are your thoughts? |
| Annamarie | doctors are suggesting a full allrgy and systemic evaluation - will this help find the trigger? |
| CRH | Stress is major factor for me. |
| lg | Lidex gel works most of the time for me |
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| Dee | I didn't have my amalgem filling replaced because of LP. It was about20 year s old when it came out. I devbeloped my contact sensitivity to nickel about 5-10 year safter the metal filling. |
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| Nathan | Could fibromyalgia cause OLP to flare up? |
| trees | reijo, each case is different. If it is severe then topical steroids are probably necessary daily. If it is real mild no treatment may be necessary. and there are gradiations in between |
| maryjo | After months of Metha trexate and Imuran in conjunction with prednisone - whith no results and clobetesol - what would your suggest next? |
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| reijo | mine is mild but i am thinking of things like diet- what to have and what to avoid generally |
| drepstein | Daily management: first accurate diagnosis; treatment with topicals if symptomatic; good oral hygiene and avoiding anything that is irritating (sensitive); and if symptomatic topical medicines that suppress tissue inflammation. Overall management includes ongoing followup by experienced providers. |
| jopalis | Can any kind of protocol be introduced for the chat? |
| Anley | Dr. Epstein, Are there any vitamins you'd recommend? |
| trees | Nathan, i don't think so but sometimes people with fibromyalgia have dry mouth and that could make the olp somewhat worse |
| maryjo | I've been too 4 experienced providers |
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| Missy | One doctor told me to take selenium and magnesium suppliments...I have not taken them yet |
| jopalis | maryjo what are they doing for you? |
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| drepstein | For resistant lichen planus dose of medication used, and cosideration of the multipole medications that modulate the immune system (learned form tansplant medicine) should be considered. Management of syptoms is also needed-in other words, if painful, pain control is needed. |
| Irene | Who would I see in Dallas, TX as an experienced provider? My dentist freely admints that he knows nothing about OLP... |
| CRH | cinnamon, wine, horseradish and other foodstuffs irritate the condition |
| lg | Dr. Epstein....I am still interested in finding out if there is any real connection between my occasional bad OLP flareups and the use of |
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| lg | oral fluconazole |
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| trees | maryjo, hard to make a suggestion on line there are, however, other meds such as topical tacrolimus that have show some benefit. |
| Lyn | Type hereIs any kind of muscle or joint pain associated with olp |
| trees | Irene, in Dallas, contact the Stomatology |
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| Dee | I also find that Lidex work swell for me. I use teh cream but need the gel when I get LP on "thick" areas of skin (palm, etc). I also take Benadryl as this seems to help a bit -- and when my LP is active, I add on Reactine (a non-drowsy antihistamine available without Rx in Canada) as the antihismines do help. I wonder -- if antihistamines help, does that mean that LP is a type of allergic reaction? |
| drepstein | It is unlikely that fluconazxole is a cause of OLP-but any medicine can potentially casue a drug ration that looks like LP (lichenoid drug eruption). |
| jopalis | I have old mercury fillings and gold crowns...also started hormone therapy... all liinks? |
| Nathan | I have heard that OLP usually has an underlying cause; I was wondering if this was an accurate assumption? |
| maryjo | I actually emailed you a whole history I ham now on Imuran and clobetisol ointment have also had methitrexzate, lots of different kninds o streroid treatments and all kind of mouth oinments and swishes |
| trees | Ilene, in Dallas contact the Stomatology Center at Baylor dental college. |
| Judah | I am four months into a new therapy for HepC for those of us who did not respond to Pegasys/riboviran - -it is a different kind of interferon with riboviran. I am HepC free after 4 months, for today anyway, but it has really exacerbated my OLP, which is generally pretty mild |
| Anley | Dee, that's a good point! |
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| Irene | Trees - Thanks a lot, trees! |
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| drepstein | Antihistmines may reduce the inflammory reaction or swelling, but is not considered a primary treatment. |
| maryjo | really sorry abouthe Hep C |
| trees | jopalis, not necessarily, many people who do not have OLP have these things |
| jopalis | started out as a recurring blister behind tooth.... now white veiny lines and occasional blisters. Jaw joint always torn up a bit. |
| lg | No, no, no....I wasn't saying that the oral fluconazole was causing the OLP--quite the contrary....it calms my flareups and helps my OLP! |
| Ann | shouldn't we all be tested for Hepititis to see if its the cause, |
| Nathan | I think we should? |
| Missy | my OLP is primarily on my bottom front gums ..not on the top or back ...that seems strange to me |
| jopalis | maryjo...I asked you and am not provider here... just another patient |
| trees | Ann, so far the studies in the US show that not many people with OLP have hepC. However, it you have had OLP for a long time it is not a bad idea. |
| drepstein | some strains of Hepatitis C (HCV) in some countires have been assoicated with LP (but not in the USA); use of antivirals could potentially stimulate at lichn planus-like reaction-lichenoid drug reaction |
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| Anley | Missy, That's true for me too. |
| Judah | It is not an un common disease with those who have Hep C |
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| Ann | I did have mine tested and d idn't have it |
| Missy | My son had gotten something while in college and came home....very sick ...we were never sure if it was Hep C ..but maybe I got a mild form of it that caused OLP? |
| Anley | Missy, Neither is it on the inside of my teeth. Why would that be? |
| Nathan | I got mine after I returned from Korea |
| MaryC | Clobetasol .05% propionate gel / rinse for out patient with servere erosive OLP - thoughts? |
| Dee | Am I correct in thinking that if a person gets a lichenoid reaction from a drug, that will go away once the drug is out of the person's system? |
| trees | Missy, obviously that is possible but not likely |
| maryjo | My OLP is all over my mouth cheeks tongue frot of mouth and lips,really bad |
| trees | Dee yes |
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| DanUK | Dr Epstein, If the OLP is not actually causing pain, is there any reason to still avoid certain kinds of foods (for example, tomatoes or citrus fruits)? Or is the rule that if it doesn't hurt at the time of eating, then it won't exacerbate the OLP? |
| Missy | I wish OLP was not so mysterious and I wish I had heard of another person having it so I would not feel isolated with a condition I have no clue about |
| drepstein | lichenoid drug reactions may settle with change in medication, but also once triggered can persist, so that treatment includes stopping the medicine and using standard tx for LP |
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| Anley | maryjo, are the back, inside of your teeth affected? |
| Miles | Mine is all on my cheek walls, mostly near the bottom |
| jopalis | I have to watch my sugar but am not diabetic yet.... I think yeast growth may be in the mix but not sure. Is OLP related to blood sugar or yeast? |
| cath | good question DanUK |
| Missy | You all are the only people I know who have it.. |
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| trees | Mary C. A lot of people like that approach but I am not a fan of rinses because they may increase systemic absorption of the steroid |
| Irene | I don't want to be too persistent here, but have there been any recent studies regarding the use of Aloe Vera? It works so well for me that I am wondering about that. |
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| maryrn | About 3 months ago my olp flared and was quite severe. A month ago I developed an abcess in a capped tooth. I was treated with antibiotics and had a root canal. The olp subsided almost immediately. Any comments??? |
| drepstein | LP is one of the most common oral soft tissue conditions; fortunately only a subset have symptoms. |
| Diane | Type hereI have been gertting mouth sores that come and go in a day. |
| lg | Maybe we "sufferers" need to get together and try to raise awareness and money for LP!!!! |
| Annamarie | Whwew do you buy this Alo Vera juice? |
| Irene | Annamarie - Health food store like Whole Foods... |
| Missy | I wish we could start a message board to go to between these discussions |
| Dee | I aksed about lichenoid reactions because I had taken some NSAIDS for RSI in my wrist before I developed LP (three/four years ago). Stopped totally but am on a short coutrse of Ansaid right now. |
| Irene | Missy: GREAT idea! |
| Anley | Maryrn, That sort of goes hand in hand with what I've concluded. |
| drepstein | I would encourgae those with LP to promote the need for more support for research funding. |
| dab | Irene, how are you taking aloe vera? Have never heard this discussed before |
| jopalis | HOW DO YOUUSE ALOE VERA |
| Irene | Described it earlier in this discussion: drink 2 oz a day after swishing it in my mouth |
| trees | Ilene you are lucky most studies show no benefit and the only positive one I know about shouwed only some slight benefit |
| oklahoma38 | 4 tablespoon swish and swallow |
| lg | A message board is a wonderful idea....how do we do it? |
| Missy | E-mail me at mshomeseller@yahoo.com if you are interested in a OLP message board |
| Diane | Does anyone know if Actonel is a cause |
| oklahoma38 | GETORGES ALOE VERA IS THE BEST |
| Dee | Dr Epstein, HOW do we advocate for more research funding into LP? How do I direct my charitable money to LP research? |
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| Ann | any meds can be a contibutor correct |
| lg | Missy....will do! |
| Irene | Trees - that's interesting. I guess I AM lucky. But who knows if it will last... |
| jopalis | YES MESSAGE BOARD PLEASE!!! This is going too fast.... should be a protocol |
| maryjo | How about Tegretol being a contributor? |
| oklahoma38 | GEORGES ALOE VERA JUICE HAS HELPED ME MADE BY DR GEORGE WARREN |
| trees | Ann, potentially although some more than others, antiinflammatories, hypertension meds, antidiabetics for example |
| Dee | This is cross talk, but there is an active and good peer support group at Yahoo for LP. |
| Irene | Oklahoma, where do you get that Aloe? |
| Missy | My e-mail again is mshomeseller@yahoo.com for people interested in a message board |
| cath | Dr Epstein, should one discontinue foods like tomatos even when all lichenoid lesions have cleared? |
| maryjo | Sorry but Aloe iddn't help me |
| Ann | do you mean diabete meds can contibute too |
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| drepstein | I am not aware of Actonel as a specific cuase, although there can be some skin/esophageal reactions |
| Anley | The screen's to small... |
| oklahoma38 | IG ET ON INTERNET AT VITACOST.COM THATS THE CHEAPEST PLACE I GET MY GALLON |
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| trees | Ann, yes but most likely some of the older oral ones |
| Irene | Thanks for the website! |
| rich | Aloe didn't help me either |
| aupton | Folks, Dr. Burkhart sends her apologies for not being able to join us today. For those who sent her questions for the session, we will try to post your questions and Dr. Burkhart's answers on the Web site in the near future. The transcript for this session will be posted on the Web site within a couple of days. |
| oklahoma38 | IT HAS REALLY HELPED ME |
| jopalis | I will try Yahoo for LP....others? Is it a message board. |
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| Ann | wow so many things can contibute to makeing OLP worse we need a book to help us |
| Dee | Yes, thanks to Drs Rees and Burkhart for the wonderful online LP resource. |
| lg | What is the address for the yahoo lp message board? |
| oklahoma38 | MY ORL WAS SO BAD I COULDNT EAT AND I GOT THAT AND IT IS REALLY DOING MUCH BETTER |
| Missy | I will also hunt the LP on Yahoo...or e-mail me at mshomeseller@yahoo.com and we will figure something out |
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| trees | Ann, there is a lot of info on that at this web site so this is a good place to start. |
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| Ann | Ok will email you at Yahoo |
| jopalis | jopalis@ca.rr.com |
| maryjo | Any answer on the next step after Imuran and Methatrexate? |
| Dee | Can't remember -- but go to Yahoo groups, look up health, and search for lichen planus. There are two -- only one is active. I actually found that group (and the wonderful Baylor site) by doing a Google search. |
| Loraine | Dr. James Radosevich at the U of Illinois is trying to put together a conference on LP, but needs funding. Please contact him at jrados@uic.edu . He needs your help with funding and we need the conference to take place. He will contact experts from all over the world. |
| trees | Ann, I suggesterd topical tacrolimus |
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| oklahoma38 | I have really enjoyed this and DR Epstein thanks for confirming the use of Aloe Vera |
| Anley | I found that eating at reg. meal time and not snacking in between helps |
| MaryC | What is the order of things you would try for a patient with severe erosive lichen planus? |
| Missy | OLP "The Mystery Disease" we should submit to that show on TV that is Medical Mysteries |
| jopalis | I was diagnosed a year ago.... No meds. No treatment. Doc said steroids cause other problems. |
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| oklahoma38 | Off to work now bye to all |
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| drepstein | there are many options after use of MTX/and Imuran-choices for next steps depends on personal health issues, other conditions and even factors such as cost of medications. |
| scott | My problem is that NAISD drugs cause flare ups, but I need to use them to rehab sports injuries often. Tylenol does not have the blood thinning properties to reduce inflamation. Anyone have suggestions? |
| jopalis | OK38 are you just doing aloe? |
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| jopalis | OK38 go to yahoo as well. |
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| trees | Missy, that is ok as long as you don't have the erosive form that can be quite painful |
| Miles | Jopalis, I've had it 6 years, dentist and oral surgen said the same thing, avoid steroids, |
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| Dee | Steroids can cause problems but you should see another Dr before you decide you will forgo all ttreatment for LP. STeroids are well understood and don't cause problems in most people -- expecially if they are being monitored by their doctor! |
| maryjo | I'm pretty distruaght - thanks all |
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| drepstein | Order for tx OLP: topicaqol steroids first, reduce local lirritants - good oral care-sympotom mangement if pain presnet; short course systemic medications with topical steroids, as maintanence, then various agents, with focus on topicals and moving to systemic agents. |
| jopalis | THIS IS CHAOS |
| Eileen | Is there a specialist around Little Rock, AR that specializes in OLP? Should I just e-mail you for this info. Thanks |
| aupton | Folks, please keep the topic to LP. Address you questions, and allow the Docs to answer. |
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| Dee | Maryjo, did you post your email? I'll send you a message witha link to the Yahoo group. |
| maryjo | Did all of that |
| Missy | I will sure try the aloe vera....and wonder if taking nutritional suppliments such as the "Nashville Diet: suggests for a variety of ailments |
| jed | Type here Any concerns with dental implants and errosive LP? |
| jopalis | LINK TO ME TOO PLEASE |
| trees | Someone asked about the incidence of lip lesions and how treated. Our data shows about 5% or 800 some odd patients have lip lesins. We use a very mild topical steroid, desonide |
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| Missy | How far is Little Rock from Memphis? Dr Robert Kaplan in Memphis is good |
| marymac | Type heremy lp is very bad, especially in the night can anyone suggest something to put in my mouth to stop my tongue sticking to the sides of my mouth |
| Judah | biotene oral balance, marymac |
| Anley | jopalis, what are you finding helpful? |
| drepstein | Dental implants are new to the field; they are titanium which is typically well tolerated. |
| Eileen | Little Rock about 2 hours from Memphis. I could do that! |
| jopalis | LINK....to jopalis@ca.rr.com PLEASE |
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| maryjo | Yes did ppost email thanks I will look for the group Thanks everyone - back to work BIOtene has products and gels for dry mouth |
| trees | Jed. the risk is very small since titatnium is rarely allergenic |
| Ann | my dr in seattle says that metals like short out in your mouth and can cause this reaction is this true |
| Annamarie | does anyone know of a good specialist in the Chicago area - dentist or otherwise? |
| Dee | Doctors, can you post info about the potential LP confreence on the Baylor site? |
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| Missy | He is suppose to be the #1 Dermatologist and has a place that custom mixes ointment for the mouth |
| Missy | Dr. Kaplan in Memphis |
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| Anley | Anley, Isn't titanium radio active? I could be wrong, tell me |
| trees | Ann, Maybe but I don;t agree |
| aupton | Dee, send the info to Dr. Burkhart and we can post it. |
| Shirley | Dr. Epstein, I need a doctor or dentist in the Tampa Bay area of Florida, preferably, Clearwater or St. Petersburg for OLP. Could you recommend someone, please? |
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| Eileen | dsam2br@yahoo.com in Little Rock. |
| drepstein | If you are in Seattle the expert on metals is at UW. some patients do show an improvement with metals removed. |
| jed | Any thougts on grafting for the errosive parts of gum tissue?S |
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| marymac | i live in england doesanyone here have any ideas what to use as a nighttime unsticker |
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| Ann | I don't live in Seattle but am going to a specialist at the UW |
| Dee | Sorry, Aupton -- send *what* info? Dr Epstein ahd mentioned a conference when I asked how can patients lobby for more research resources. |
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| lg | marymac...have you tried Lidex gel? |
| rich | dr Epstein - which department of UDUB has the metaLS EXPERT? |
| drepstein | For people in Florida, I suggest contact with Nova southeastern dental school (Ft Lauderdale) and they can suggest if there is someone close in FL. Contact the Dept of Oral Medicine for information |
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| trees | jed, that is a very old treatment with only mixed success. I have nice pics of someone who developed OLP on grafts done as a treatment for olp |
| jopalis | I am doing nothing at all.... Just white veiny lines and occasional blisters. Maybe it will get worse. I don't know what to do . |
| Ann | Is it a big concern for people with OLP using SLS in their toothpaste did you agree on this |
| Missy | I don't think anyone knows or cares about OLP but US so who would even donate for a study...I have read OLP may be connected to psoriasis |
| aupton | Dee, I misunderstood. We will look into the conference and posting information about it after the session today. |
| trees | jopalis, you should see an oral medicine expert. Contact Dr. Burkhart and she can hopefully help you find someone to see near you |
| lg | Jopalis....try an oral gel such as LIdex....it is a prescription. |
| drepstein | In Seattle, it is the Dept of Oral Medicine, School of Dentistry; the faculty member is Dr. Michael Martin. |
| Miles | jopalis, I am in the same position, but had it 6 years, and it is actually better now than ever, I don't notice it, but dentist confirms it is still there, and I can feel the rough areas |
| rich | Thanks |
| Dee | Jopalis, my LP has been mainly skin but I did get very mild OLP. An oral pathologist had me eliminate known irritants (starting witha switch to Biotene toothpaste) and I was very lucky that it resolved. I have my dentist examine me for signs of OLP every 6 months. |
| lg | How about a specialist in Birmingham, AL? |
| Ann | YEs, my dr is Micheal Martin hes great |
| Ann | thank you |
| reijo | what is biotene |
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| trees | Ig, Dr. Burkhart should be able to give you a name |
| Judah | It is a brand name of dental products, most of which are helpful for OLP |
| drepstein | In Birmingham, Dr. Andrei Barasch at the University |
| Miles | biltene is a brand of toothpaste and mouth wash |
| jopalis | Contact Dr. Burkhart through this site? HOW CONTACT DR |
| Missy | Bartlett Drugs in Tennessee has a compounded ointment..that Dr. Kaplan orders for LP...they will mail if you can get your doctor to order it |
| Patsy | find biotene in your local pharmacy. They have a mouthwash that is very good for dry mouth as well |
| Ann | MIcheal Martin is doing a study and writing a book on OLP |
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| lg | Thank you! |
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| aupton | Folks, the Doctors will be leaving the session in about 5 minutes. Please bring your discussion strings to a close. Thanks to everyone for participating today. The transcript will be posted by the weekend. |
| Miles | Wal Mart carries it, other drug stores often don't have it, biotene that is |
| Missy | When will he be finished with the book on OLP |
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| Annamarie | Where is dr. Matin located? |
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| Missy | Thanks everyone! |
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| jed | Sorry I had to join late will look forward to the notes, thanks for the information |
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| Ann | Dr Martin is in Seattle at the university of Washington |
| scott | aupton - how many times do we ask a question to get it answered. I tried 3 times and got no response. |
| trees | Someone asked about acupuncture. It has been tried mostly in Russia but the ouctome is not clear. Has anyone tried it? |
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| jopalis | CAN WE FREEZE THIS TO CATCH UP ON READING? |
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| maryrn | Target also has biotene products and at a pretty good price compared to other drug chains. Im not sure what Walmart charges. |
| trees | scott, sorry, what's the question |
| Loraine | Thanks, until next time. |
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| aupton | scott, email dr burkhart with your questions. The doctors answer as many questions as they can thanks for p articipationg today. |
| Annamarie | Where should I go first to find a specialist in Chicago? |
| scott | I cannot use NAISD drugs, but need them to do sports rehab. Any suggestions? |
| marymac | is there a self help group like this in england |
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| Missy | You can order Ulcer Ease Mouthwash from WalGreens online - it helps |
| scott | Tylenol does not have the blood thinning properties needed to reduce inflamation, but ibuprophin causes flareups in my mouth. |
| Diane | Does anyone know if Actonel causes OLP |
| trees | scott, yeah, somewhere earlier is a response. Try extra strenght typenol |
| drepstein | in Chicago, we have an oral medicine group at the University of Illinois-appointments by calling 312 355-1222 |
| aupton | Folks, the Doctors will be leaving the session shortly. Please bring your discussion strings to a close. Thanks to everyone for participating today. The transcript will be posted by the weekend. |
| jopalis | HOW TO CONTACT DR BURKHART???? |
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| Ann | Thank you so much for this discussion |
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| jopalis | Please...how to contact Dr. Burkhardt?????? |
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| rich | aupton - do you want any suggestions on how to design this "chat room" to make it easier to read and understand? |
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| Annamarie | my OLP started when I got a flu shot -- think there coyld be a connection? |
| drepstein | This was pretty hectic for a while! I am happy to see the interest, and hope some of the information was of help. |
| Missy | I think Dr B's info is on the website? |
| aupton | The Web site has dr. Burkhart's email address -- Thanks to all for participating today, particularly to Dr. Epstein, or special guest. The room will be closing in 5 minutes. Please sign off, and keep watching for future sessions. |
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| trees | Jpel, now you see why we wanted to try answering submitted questions. It is tough on us and the parcipants when things ar happening so fast. Nancy and I greatly apprecfiate you participating and hope you will consider doing it agian. |
| Missy | We need to learn to wait until one question is over before starting a new one..:-) |
| lg | nburkhart@tambcd.edu |
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| bill | Type here this call was not managed of focused and |
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| Missy | Maybe we could submit the questions first...let the doctor address them then ask for questions about that particular topic |
| trees | Does anyone have a last minute uesion |
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| lg | or go to http://www.tambcd.edu/bcdwebcomm/chat/ |
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| trees | Missy, that was what we intended to do today but we will try again next time |
| Ann | when is the next session usually in a few months? |
| lg | jopalis....did you get that info? |
| jopalis | NO |
| trees | Yes, watch for an announcement on the website. No date has been picked yet |
| ruthanne | Type hereI tuned in late,any exciting news,today? |
| lg | nburkhart@tambcd.edu |
| lg | That is Dr. Burkhart's email address |
| jopalis | WHAT INFO? i AM TRYING SO HARD TO READ THIS BUT KEEPS MOVING....TOO FAST... |
| aupton | The session is over everyone. The room will be closing in a moment. Thanks again for participating. |
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| lg | I will email you |
| karenz | Thank you |
| drepstein | Thanks to all. |
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| aupton | Thanks, Dr. Epstein! |
| Missy | Thank you Dr. E |
| MaryC | Thanks also |
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| lg | Thank you |
| ruthanne | Also the type is so small ,hard to read |
| trees | Thanks, folks please read the transcript and things will be much more clear. |
| Missy | You can make the type larger on your controls... |
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| Miles | next time choose float, then you will have full screen and can increase the font |
| Missy | and you can "float" the screen to make it the size of your moniter |
| Missy | that will help |
| lg | jopalis....what is your email address/ |
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| jopalis | GOT IT |
| jopalis | THX |
| lg | no problem |
| lg | good luck |
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| karenz | how do you retrieve the transcript |
| jopalis | jOPALIS jopalis@ca.rr.com |
| Missy | it will be on the website in a day or two..to retrieve transcript |
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| karenz | okay thanks |
| mary | Type here |
| jopalis | jopalis@ca.rr.com |
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| jopalis | I am in Los Angeles area.... doc? |
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| jughead | hello? |
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